PREFACE

LAST UPDATE  :  23 NOVEMBER 2017 (PREFACE AND COIL REMOVAL)

If you are researching the true effects of varicocele embolization surgery, you are not alone.  Gaining in visibility since its creation in 2015, by mid 2016 this website was on the first google result page while searching for “varicocele embolization”.  But for unknown reasons, this site has now disappeared from google search results.  Now it doesn’t even appear when searching for “against varicocele embolization”.   Attempts at contacting google have been answered but they say they can’t detect any problem and say that they’re not involved.  It’s a mystery, and a shame, because this site has helped many people. If anyone could help with this issue please contact me.  And, of course, help spread the word on the dangers of varicocele embolizations by sharing this website. 

UPDATE : good news, folks.  it seems that i’m back into google search results.  don’t know why or what happened, but it’s great to see.  Currently averaging about 3000 unique visitors a month. 

************

I underwent a varicocele embolization procedure in June 2008 for pain in my left testicle that was moderate but not overbearing. I was 28 at the time.

I had done some research online and, according to numerous websites, varicocele embolization carries basically no risks and the only possible problem that may arise from the procedure is a reoccurrence of the varicocele. In other words, you can’t be worse off than you started. I thought to get rid of slight annoyance. I saw a radiologist specializing in embolizations who confirmed the low risks. He lectures all over the world on the subject and he eventually performed the operation on me.

Having a varicocele embolization turned out to be the worst decision I have ever made in my life.

The goals of this website are:

  • to make people think twice about getting a varicocele embolization,
  • to hear other people’s stories and problems with this type of embolization, and
  • to share detailed information on the solution to these problems.  Specifically:  the removal of the coils has proved to be a viable solution.  According to testimony from those who have had the coils removed (including myself), their removal is extremely beneficial and more or less without side effects even months after the operation.

Please note:  I get a lot of people writing to this website, asking what they should do about their varicocele, and how to deal with the pain.  Unfortunately, i can’t post all of these comments because the website would lose its meaning.  This is not a varicocele-help website.  This is a website dedicated to sharing the true dangers of varicocele embolizations.   If you are writing to ask whether or not you should undergo an embolization for your varicocele, the answer is clearly, in my opinion:  NO!
I also get an occasional person trying to post that varicocele embolizations aren’t dangerous, that i’m wrong, that the medical establishment can’t be so wrong.   I won’t post these comments.  I’m sure there are plenty of people out there that don’t agree with me… notably, all the doctors willing to perform embolizations in the first place.  This website is about about people sharing their problems with the procedure, not all the success stories (yes i hope they exist too) and second-hand opinions.
PS.  It seems there are important differences between embolizations with and without the insertion of metal coils.  This webpage concerns primarily coil embolizations.  See John’s post below for more information about non-coil embolizations.

On November 18, 2016, I myself underwent laparoscopic surgery with Dr. Pierre Attignac of Paris, France to remove the embolization coils.  It has been over a year and I haven’t regretted it for one second–I’d do it again in a heartbeat.  See updates on my page COIL REMOVAL SURGERY AND RECOVERY for more information. 

The following is a list of doctors that have performed the coil removal operation or expressed willingness to try (please contact me to add to this list):

Dr. Antonio Finelli, Princess Margaret Hospital in Toronto, Canada (patient : Mike, see posts below)
Fahad Bamehriz, King Khalid hospital at King Saud University, Saudi Arabia (patient : Mohammed, this is the video that can be seen on youtube, also see topix posts)
Timothy Hagreev, who performed an open surgery removal, from the interventional Radiology handbook, a retired UK surgeon
____?____, the swiss doctor that performed the removal on Fabian from Switzerland, see topix posts
Pierre Attignac, Urologist based in Paris, France, (He performed the removal on me the 18th of November 2016)
Dr Kozlowski and Dr Brandenberger, Virginia Mason in Seattle, WA.  (patient:  Kevin, see post below)   (FYI– Kevin has not responded in months to questions regarding his status.  I have no idea how he has fared since surgery.)

Dr. Kevin Petersen of No Insurance Surgery, Las Vegas NV  (patient:  Chip, see post below)
Dr Beley Sébastien, Paris France (patient:  Michael, see posts below.)
Dr Neil Barber, Nuffield Woking Hospital, Woking England (near London) (see JH’s post below)

Dr. Robert Stein, Cleveland Clinic in Ohio, US (patient:  Scott, see post and operating report below)
__?__, Erasmus MC in Rotterdam, Netherlands (patient:  Edo, see post below)

Feel free to send me comments; if suitable, I will be happy to post.

First time commentors:  if possible, please state where you are located, how old you are, and other related medical history.  It gives us an idea where everyone is and their situation. 

 

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

243 thoughts on “PREFACE

  1. Had the embolization done in 2013, also the worst decision I’ve ever made. The pain has been steady, and awful, since I left the hospital. Left back, side, hip, leg, and testicle. I found a urologist in SC who said he would remove the coils, trying to decide If I will risk a third surgery. Any progress on your end?

  2. Thanks for your comment James. If you can, please post a more detailed account of your story.
    On my end, I am still interested in surgery, waiting to find the right doctor. Looking into it. Will keep everyone posted.
    Best regards

  3. Hi. It’s not just men who have problems. I had platinum and titanium coils put into my groin for varicose veins. I never had the rest of the surgery because I became so I’ll. I crashed. Since then I’ve seen 12 consultants and been diagnosed with CFS and fibromyalgia. But I have localised pain where the coils are. I’m in constant pain but the radiologist and vascular surgeon denied it was anything to do with the coils. Professor Whiteley of the Whiteley clinic said there was no medical evidence in the world of people suffering problems. They lie. A friend of the radiologist made a botched try to remove them in Jan this year. He told me to get on with it. I have taped the conversation. I’m now trying to find a surgeon to take me on. Worldwide. It has ruined my life. I posted on the website topix because there are women out there too. The only literature I could find was on pubmed. Melissa the metal blood testing people were helpful but the tests for platinum and tungsten came back positive. But I’m in constant pain. I have trained myself in many holistic therapies to help myself but these are metal and block energy flow. Every osteopath says the same thing. Fabio from Italy found a surgeon to remove the coils after 20 years. I’m on a quest to do the same. I want my life back. I’d like to get in touch if you are willing. This needs to be stopped. I’ve also considered suing !! Pam Burn

  4. Hi Pam, Every day that passes i am more and more amazed by how widespread these problems are with embolization and the medical establishment lets it continue. These procedures must be either stopped or potential patients made aware of the possible effects. Could you please explain what “a botched try to remove [the coils]” entailed? And when were the coils first inserted? I will also send you an email privately but I’d like to keep the discussion as public as possible—other people can gain a lot from it.
    Thanks, good luck

  5. I have been 10 years with it all. I “knew” it wasn’t right immediately. Metals in the body are toxic. I’ve subsequently been diagnosed with idiopathic neurological symptoms, fibromyalgia, chronic fatigue, lichen planus, and vit b12 deficiency with celiac disease. I have tried every diet and every fast/ cleanse but pain continues. I have uncovered all the autoimmune stuff over that time and all the research points to metal issues. I got a small sample of the metal for analysis. It’s platinum and tungsten which are supposedly inert! Have a look at the pubmed site for info on these metals in the human body and how they can be toxic and migrate. I was heartened by the story of Fabio ( on the Topix site) who had variocele coils removed after 20 years of pain. He is now pain free.

  6. in 1998 at the age of 12 had the operation, 3 days after had a lumbar pain I could hardly move for 3 months, after have had abdominal and back pain ever since.
    I had no clue I was going to have coils in my body.
    The decision wasn’t mine, but would 99% of mothers do when you have a doctor telling you its the safest procedure out there, the term he used was its half operation,its nothing.
    I had 1 coil very strangely place right next to the solar plexus region and after the operation was told to be careful with the coil (how can I be careful?).
    Now I have a an abdominal aortic aneurysm and my life is at a high risk, the coils have caused circulation problems.
    If your deciding to the have the operation, DONT. A little testicle pain is not worth it even for fertility reasons, adopt! its not worthwhile.

  7. I’m sorry, I do not. As soon as I know of a doctor that does embolization reversal surgery, I will post it. If anyone knows of such a doctor, anywhere, please share.
    Best,
    AVE

  8. thank you for creating this website, i was going to get the embolisation done, but you have changed my mind.

  9. Hi guys, I had varicocele embolization 4 weeks ago. Swelling is large than used to be. I get pain if I exercise, which I never experience before the procedure. I am thinking to remove the coils. Any suggestions? A good surgeon? I live in Atlanta, ga. I don’t mind a good surgeon in Barcelona Spain, Lyons France, or Monterey ca.

    Thank you

  10. Have had pelvic floor coil since 1999. Was happy immediately, then became severely ill in 2005. Auto-immune issues so severe I was debilated, now cancer, and the past two months such pain post radiation in my lower back/legs, that I cannot walk.
    MRIs are coming back inconclusive because the coil is blurring the image. My doctor is looking at removing coil.
    I’m hypersensitive to Nickle and most metals (so having one internally can’t be good?!), and now have celiac disease as well.
    I have no idea what is coil related and what is not, but after reading so many comments that sound like mine, and knowing my current pain and auto immune issues, I would highly warn anyone looking at this surgery to be forewarned.

  11. sorry to hear about this cindy. i have learned that my coils are made by the company “Nester” and are probably nearly 100% platinum. see the naturalnews website for alternative cancer treatments, if interested. they have posted some webinars on the subject. good luck.

  12. I have had a varicocele in my left sack since puberty, I thought this was totally normal as I have never suffered much pain. I recently asked my doctor to check for lumps as it is common advise to regularly check for lumps, he instantly notices the varicocele. Without hesitation he tells me I will need surgery (the worm bag is golf ball size when fully flooded), and even if the specialist says “no surgery” the doctor told me to insist on surgery.

    I’ve been referred for an ultrasound appointment which should be soon so I will know more then. In the mean time I started my research into the issue. the first procedure I found when searching google was embolization. I was instantly relieved as it sounds very simple and has great results – or at least that is what I have been lead to believe. Now after research and reading peoples feedback from the procedure i wont be undertaking embolization. And the more you think about the procedure the less sense it makes, you will be blocking the main vein into the testes with a foreign object inserted inside the vein!

    I’m now going to try alternate healing practice, and only go for surgery as a last resort.

    What I did find suspicious when searching about varicocele was 2 Daily Mail pages that were high on the search results. Both articles mention a patient Andrew Pennington with successful results from an embolization, and both seem to promote Dr. Paul Crowe and his surgery and procedures. The daily mail is well know to promote products and services as news.

  13. Hi Andrew, thanks for your comments. In my opinion, no surgery or embolization should be performed unless your circumstances/pain is intolerable. A very good urologist recently told me (while meeting him for the first time) that varicocele operations are senseless unless you have specific, measurable blood flow issues that do not necessarily coincide with varicoceles. We are performing tests and depending on these tests he may be willing to operate to remove the coils. I will keep everyone posted. the doctor is located in Paris, France.

  14. Hi, I’m 20 and I’ve left varicocele grade 3 since I was about 11 or 12. I wanted to get it removed to prevent testicle shrinkage and possible fertility problems, so better get it treated earlier than later (as it’s been almost 10 years already…).

    Doing my research it looks like embolization has less dangers and side effects than microsurgery, so maybe you’re part of a small minority whose body can’t accept metals maybe allergy or something? Do you have any articles, numbers, or statistics about the problems and side effects of embolization?
    As i’ve been doing my research I couldn’t find anything, except this website and a video on youtube (from which I came from), please send me any information you have about this !

    Since microsurgery seems to present even more problems and side effects, what am I supposed to do to cure my varicocele?

    sorry if I sound a bit nervous, i’m really concerned about this issue.

    Also I live in France so i’m interested in that surgeon in paris, what’s his name? @admin
    thanks

  15. Hi Chris
    Unfortunately, statistics are precisely the problem. Before I did the operation i found only good reviews about embolization…. no side effects, little operation problems, etc.
    The reality of it, clearly, after reading blogs and the posts here, is that post operation pain and problems are evidently an important risk and far more frequent that the radiologists and operation pushers would have you believe.

    Not a chance in hell that i would risk it, even if i had heavy varicocele pain, with all i’ve been through. if your problem is just “annoying” or “maybe a fertility problem” even more so. if your varicocele is horribly painful then you should talk to a really good doctor. I’ve sent the urologist’s name to you via email (if you left your accurate email address). I’d rather not post it here bc i’m still verifying if i think he’s good. so far, seems very competent.

  16. Hi Im 26 and had Varicocele embolization in 2010 which was highly unsuccessful. I then went on to have (key hole surgery) laparoscopic embolization in 2011 which was 80%-90% successful as an ultra sound confirmed. I have had another ultra sound, which has shown that there have been recurrences so I would give a rough estimate and say it was about 60% successful.

    From my own experience I would not recommend these operations especially varicocele embolization. If you were to have any of these operations go for the laparoscopic embolization. But only consider doing so if you feel dull aches in your testicles, like I did, and it is unbearable, or if it is for fertility treatment. But even then I still would tell you don’t do it , take the pain and hopefully it goes away.

    I have visited numerous gp’s that have referred me to multiple urologist to try and get these coils removed, as I still get pain especially in the lower back only to be told that they wouldn’t do it and it would be a big operation to remove them and that I could end up losing a testicle, and they could end up causing more harm then good, and finding these coils as they are tiny would be very difficult. They also claim that this procedure is completely safe and there is no evidence to suggest the coils are contributing to the pain I am getting.

    I also saw on this thread the mention of dr crowe who actually preformed my Varicocele embolization procedure. He’s a top Radiologist. I had a telephone conversation with him about my concerns. I will list the questions I asked and response he gave me.

    Can these coils ever move in the body?
    Response: “No. The chances of these things moving are virtually nil”

    How safe are these coils in the body long term?
    Response: he said he has been using the nester platinum coils over 15 years and there has been no problems thus far. However they used to use coils made out of tungsten that turned out to bio-degradable in the body and they had to stop using them.

    I have also asked the coil migration question to Radiologist Dr. McCafferty and he said make sure you rest in the first 48 hours as they are still clotting in the body and stay off strenuous exercise for at least 7 days.

    I try not to regret much in life but these operations are something I really do regret doing. I believe the body with the right nutrients can repair itself. At the time of having these operations I was young, naive and at university studying and did not take the time to research anything on this.

    I would really like to find a surgeon to have the metal removed from my body. I don’t believe putting foreign objects in your body is healthy at all and their isn’t enough research to say if these (Nester platinum coils) are safe in the body long term.

    Could you please send me the name and contact details and as much information on that surgeon in paris? @admin

    Kind Regards

  17. So you guys know I had an vericocel embolization done in July 2013. I has nester platinum coils implanted. I was in very bad chronic pain especially in my back and abdomen. In December 2015 I had 1 of the 3 coils removed laprascopic ally by a surgeon in Toronto Canada. The area where the removal occurred is now pain free. I wish he would have gotten the other 2 coils while he was in there. He did it the same way it was done on the video on YouTube . Luckily he removed the coil in the problem area. The other coils still give me some problems but are nothing compared to the problem I was having from the one that was removed. There were no bad side effects as a result of the coil removal. Recovery was not bad either.

  18. this is very interesting, good news mike thanks for sharing. if you don’t mind, could you leave the name of the Canadian surgeon? how did you find him? feel free to give any other details of the procedure (general anesthesia, etc…). and why didn’t he remove the other 2 coils?
    all the best,
    AVE

  19. The doctors name who did the removal is named Toni Finelli. He is an excellent surgeon. I was reffered to him from my radiologists. He only removed the 1 coil as that was all he could visually see at the time. Also it was a 40 cm coil that was packed tight and he thought he had removed the lower one as well as he had removed so much coil. Only after the xray did he realize he did not get the lower one. If he would have pulled up on the gonadal vein he most likely would have seen the top of the lower coil. This was his first time ever doing this type of procedure so he wanted to see the results if there was any improvement before he would consider removing the upper one which is closer 2 the kidney. I was under General anethesia and the procedure was 1.5 hours. I had 3 small incisions. The procedure was equivalent to a laparoscopic Varicocelectomy in terms of risk. I lost almost no blood at all during the surgery. He is open to attempting the removal of the remaining coils at my request. I also have spoken in depth with the poster of the removal video on you tube. He was of great help to me.

  20. mike, your comments are of great interest. what did you learn from the youtube poster? is there any information that you find pertinent to share with us? as you can see, i think there are probably many people interested here in the removal process. As most of us don’t live near mr. Finelli, do you have any suggestions about what to tell/ask our (likely first-time) surgeon before the procedure? also, what is the risks involved in a varicocelectomy? thanks for your time.

  21. If I could do the surgery again I would make sure the doctor has xray capability in the operating room. This way the doctor could make sure all the coils are removed before closing the incisions. When looking for a surgeon to perform this operation you should try to get a urologist who specializes in laproscopic urological surgery. This way they will be very familiar with the anatomy. For most laproscopic urological surgeons a gonadal vein resection is a walk in the park. My doctor was originally going to remove the entire vein but when he was in there he realized he could just pull and the coil would come out. He said mine pulled the same way as in the video. I do not beleive the risks are overly high. All 4 people I know who have had their coils removed are for the better. No one lost a testical or has any other issues as a result of the surgery. All the surgeries were performed by different doctors in different countries all for the first time.

  22. Mike, as you are in contact with 4 people that have had coils removed, could you ask them to give us the names and locations of their surgeons?
    Thanks much if possible, best
    Ave

  23. Hello,

    Really sorry about the time.
    I work a lot, to try to recover the lost 20 years of real work, because of the tortures of the Coils.

    It is not the metal, that make the incredible suffering.
    It is another more simple an without doubt system, that produce :
    1) The difficulty of movement
    2) The smooth tortures of the complete body (muscular, digestion, …)
    3) The change of the behavior
    4) The stress in the brain
    All that is known by the producers of the coils, but money seems more important for them.
    So if somebody go on justice, I can help… I have twenty years of coils/torture experience and a full understanding of structure effects and their reasons 🙁

    I ask the surgeon, about doing the same to other people. It is not really interested to become the only guy that do this surgery, even to save lives. But email to me and I redirect the mail.

    After two year of coils removal, I really think there is a lot of risk. I start only now to have a normal feeling, where there was.

    I write the same on :
    http://www.topix.com/forum/med/urology/TUUCU6D07IG3MPM8J/p5#lastPost

    Now I will be more available.

    I hop everyone of you will remove the tortures tools as soon as possible and if you go to justice…

  24. Fabian
    thanks for your response.
    i would be more than happy to provide my anecdotal evidence in court but i am not currently interested in suing — any court proceedings would be extremely time, energy, and cost consuming. this website hopefully can have the same benefits as a court procedure without these negative aspects (of course, unlike a courtcase, we can’t win any money from this website…).
    but most importantly, i hope that we can save possible future patients from undergoing this procedure.
    the second most important thing is that people that are suffering can find a solution. considering the number of people that have written on this website and the topix site, i think it’s safe to say there is a really enormous and systemic risk involved in the embolization. with the help of this website, sensible doctors and surgeons will realize that these are not isolated incidences but a systemic problem with varicocele embolizations.
    so i hope that your surgeon will realize that he will not be the only person doing this surgery; there are people all over the world trying to solve the same issues. his experience could help others immensely. the information and experience he has gained, if shared, can help just as many people as doing more procedures.
    let’s stay in touch
    ave

  25. also, fabian, i was unable to send you an email; it came back… would it be possible to repost a message using a valid email address?
    best,
    ave

  26. Upon reading your symptoms (“numb, dead feeling”) and your (long) history, my first inclination would be that you have very low testosterone, likely caused from testicular atrophy, which could have been caused from the original varicoceles, embolization, or both. I would have it checked out. Below 350 ng/ml would definitely cause all of those symptoms. Low testosterone may also be due to higher estrogen (e2). I would have your T, e2, and LH all checked. There are plenty of drugs to regain your T.

  27. Hi KC, thanks for your message. Yes, i have been tested for testosterone levels–in 2014 i tested at 1,44 ng/ml and one month ago i tested at 0,84 ng/ml. According to the laboratory, reference values for ages 20-35 (i was born in 1980) are between 1,00 and 3,70 (i’m assuming by 350ng/ml in your message you mean 3,50ng/ml) so my level is indeed a bit low. 2014 was 4 or 5 years after my “numb dead feeling” began so i’m guessing my levels were much higher before the embolization (i had lots of energy before).
    After my latest T results, I was interested in compensating my T levels but my urologist does not seem to think it is all that low (he says that T levels come up and down easily according to many different variables) so for the moment I will not be compensating my T levels with drugs, etc.
    I have not yet been tested for the other things you mentioned (e2 and LH)

  28. Yes interestingly, my doctor was surprised that i had metal coils in my body… in fact he didn’t believe that radiologists still used the coil technique. i unfortunately had to tell him that yes it was still being used, and I showed him my xray. he said that normally today only liquid should be used. So i would assume it is probably safer, but i have no details on the matter.

  29. Dear friends , I had the same problem . I am Riccardo from Italy, excuse me for my english. I underwent in November 2009 an scleroembolization for the left varicole and they inserted the famous spiral without asking permission and without telling me. I only found out two months ago , that is now in 2016 , to have inside the platinum spiral. Since then I have never been well and just now I associate all my problems with the damn spiral. I have pain pre and post sex, I have difficulty pissing , I have strange allergies with eye irritation given to me by a chronic blepharitis as well as strange itchy rashes . Now I’m looking here in Italy for a doctor who can put in writing my problems and associate them to the spiral of platinum. This is very difficult. I need to find a doctor that will support me in court in order to ask for damages to the hospital. I ask for help to all of you to refer me to a doctor in Italy or that has relationships with Italian doctors who can support me . Thank you. Greetings. Riccardo

  30. riccardo, thanks for your message. if i hear of any doctors in Italy I will let you know. best regards

  31. Below, in French, is what the surgeon did to save my life by removing the coils.
    If somebody can translate…

    Technique opératoire
    ————————–
    Patient en décubitus dorsal sous rachianesthésie. Zinacef 1.5g i.v. à l’induction.
    Incision arciforme au pli inguinal gauche à point de départ para-pubien où on individualise le cordon spermatique qui est chargé sur un Lacs. La palpation locale démontre qu’il y a quelques nodules durs qui seront excisés dont un suspect d’être un coil. On va alors chercher le coil le plus latéral qui sera retrouvé dans le cordon spermatique. En effet, il y a là clairement un morceau de fer adhérent à un petit nerf. ce dernier sera coagulé et sectionné. Excision du coil in toto. On retourne alors au niveau du para-pubien gauche pour retrouver le même type de matériel, de fait, para-pubien gauche, au contact de l’os. Excision. A noter que pour l’excision du premier coil on aura dû ouvrir l’aponévrose du grand oblique pour suivre le cordon jusqu’à l’orifice profond. Lavage du site opératoire à l’eau physiologique. Fermeture de l’aponévrose du grand oblique au Vicryl 2.0. Fermeture superficielle au Vicryl 3.0 et surjet intradermique de Monocryl 4.0 à l’eau.

    Suite post-opératoires
    ————————–
    – Contrôle de plaie 48h
    – Contrôle de plaie à 10 jours puis 6 semaines.

    GOOD LUCK TO EVERYONE, NOW MY LIFE IS BEAUTIFUL.

    (NOTE FROM AVE: I WILL TRANSLATE THIS WHEN I HAVE TIME… it is worth reading)

  32. Bonjour Fabian

    Merci pour ton post très utile, notamment pour d’autres médecins chirurgiens.
    Je me permets de redemander le nom de ton médecin. Je ne harcèlerai pas mais il y a bcp de personnes qui souffrent et tu as la capacité de les aider, comme certainement tu as voulu être aidé avant l’opération. Si tu préfères tu peux m’envoyer un mail personnel : je ne le publierai pas et je distribuerai son nom seulement sur demande.

    Merci d’avance
    cdlt
    AVE

  33. I had the left varicocele embolization done 2 months ago. 3 sets of coils placed in different areas of the testicular vein. It seems to have affected my urinary functions and I have a lot of pressure in the testicles, buttocks, and anus area. Does anyone else have this pressure feeling or could it be un-related? All My muscles down there feel tight also and my abdomen seems to contract on it’s own sometimes. My urologist said he could remove the testicular vein. Thoughts and anyone have similar symptoms?

  34. Hi Charles,
    My advice is to trust your instinct on whether it’s unrelated or not. From your brief description, i would say yes it’s obviously related. I had sharp pain in the embolization area 4 days after my operation (in 2009), went back to the doctor and he told me it was unrelated.
    Had I read all of these comments in 2009 I suspect I would have reflected/reacted much differently…. especially with respect to my doctor.
    In my opinion, if you’ve noticed muscular or functional changes in the perineal area since the embolization–it’s clearly related.
    Fyi, i began having consistent abdomen cramps while excercising after the procedure—i never had this in all my then-28 years of heavily athletic life. I still have ab tightness to this day–even now, while typing (no pain though, thankfully, which lasted for many months, perhaps years).
    Your doctor proposes removing the vein or the embolization coil? i would say–remove the coils above all, and don’t wait.
    where are you located, if you don’t mind telling us?
    ave

  35. He said he would remove the testicular vein, which holds the coil. He wasn’t familiar with the technique of just taking out the coil. He wasn’t familiar with the technique of just removing the coil. I’ve only talked to him once, so not sure how much of the vein he could even remove.
    I’m located in Indiana. I have tightness and pressure on both sides, even though I just had it done on the left. Does that seem weird?

  36. removing the vein seems to be what my surgeon is proposing. because the vein has been embolized, it is theoretically “dead” thus removing it would not be, in theory, a problem. however, my doctor also said that it can take a while, even a couple years, for bloodflow to stabilize and find other pathways so that’s where i would be careful if i were you. my operation was 8 years ago so things have probably stabilized. but your’s was just recently.
    don’t know about the pressure question; nothing seems weird anymore to me according to my experiences–the body (re)acts in unpredictable ways.

  37. Thanks for the response about waiting – that makes sense. Removing the vein vs trying to pull out coils also seems to make more sense to me. Have you had any other symptoms other than the abdominal cramping? How many different areas of your vein has coils in it? Mine is in 3 different locations, but thankfully none in my scrotum. Highest point is lower back area and lowest point is above inguinal canal. All coils are located in the gonadal vein.

  38. The question is how long to wait… yes, you should wait long enough to remove them safely but in my opinion it is a bad idea to wait too long bc it seems, in my opinion and just from my experience of what others have expressed, that their presence can lead to other autoimmune responses. So.. Yes, i have had many other symptoms, you can read them all in the “story” sections of this website. as you can see in the image above, i have coils in two spots.

  39. Yeah, there is no longer blood running through the embolized vein, so I’m not sure removing it would affect blood flow? But 2 months is awful fast too. I am a very skinny person, so my theory is that things are tight down there for me (I’ve had some hernia surgeries on other side), so muscles might be pressing against these coiled veins. Are you also a skinny person? I also was a runner like you. Not right now, that’s for sure.

  40. Thanks for creating this site- I had microsurgical repair in 2010, which didn’t work (large grade 3/4 left side var. recurred to pretty much full size within a year/year and a half). I then had embolization down in 2014 by a radiologist who deposited coils and within a year had veins 3mm+ diameter showing up on ultrasound. The radiologist still claimed that the procedure was a success and that these (large) diameters were within the “normal” range/that there was no increase in size since the coils were placed. Not sure how that can be deemed a success when the whole purpose of the procedure was to decrease the diameter of the veins / get rid of varicocele…

    Flash forward to 2 months ago (mid June 2016) and I find myself sporting a painful scrotum the size of a grapefruit. Trip to hospital results in diagnosis of left sided hydrocele. Subsequent ultrasound confirms it, and also that a left sided varicocele is very much present.

    First two weeks with hydrocele was accompanied by pain that was bad enough that I couldn’t walk properly or do any exercise whatsoever. For the past several weeks I find myself having fairly continuous pain in my lower abdomen and left side of groin/scrotum- worse after sex and exercise.

    Interestingly, I had an X Ray done maybe a year ago by a chiropractor who noted that their was a strange object showing near the bottom of my abdomen (it was the coil(s)) and when I explained that I had embolization performed she was surprised that the coils were so low. I did bring this up with the radiologist and he shrugged it off that they were exactly where they were supposed to be. At that point I was extremely skeptical of his unwillingness to consider that they may have migrated, as I recalled him stating that he was depositing them around the height of my navel when he performed the embolization.

    I have an appt on Aug 31 with my urologist (the one who performed the failed micro surgery) and will update the forum with what he says about the whole situation. My expectation is that he’ll pitch me another surgery for combined hydrocele-varicocele repair, but I’m ready to start consulting with the Toronto surgeon who did the coil removal. I’m not sure if the hydrocele has anything to with those that could be moving around but it would be hard to not suspect that the tissue in the area was / is being effected by it, thus potentially being related to the spontaneous hydrocele.

    One other item worth noting is that my right (good) testicle had atrophied significantly (1/2 the size it used to be) since starting down the path of varicocele repair 6+ years ago

    Anyone with hydrocele as a result of varicocele treatment on the thread here?

    Thank you all for sharing your insights and experiences-

  41. Hi BB, have not heard of anyone having hydroceles on my end, neither do i understand the atrophy of the other testicle. perhaps the other forum users here. best of luck, keep us posted

  42. Hi Ave,

    Any updates on your procedure? When are you planning to get the vein removed or are you still not sure if you are going to do it?

    Also, Anybody else get a “pulsating” feeling down low around the back of the scrotum? It’s hard to describe but the best word I can come up with is pulsating.

  43. thanks, will know more at the beginning of september when the doc comes back from vaca. yes, definitely plan of getting it removed. i showed the doctor the youtube video of the embolization removal, he was confident that it was a straightforward operation. but i didn’t want to risk doing it in late july and ruining my august vacation with recovery (if needed). don’t worry will keep everyone posted.
    as for the pulsating, i just have testicle tingling above all. wouldn’t call it pulsating, and i am not sure if it is related to the embolization.
    best
    ave

  44. Hi everyone. …
    I did a varicocele embolization last week. Before the procedure i had pain coming in and out…but now it’s continuous and more dense….
    I don’t know what should I do….is there any body in India…how can i do reversal of this???

  45. As predicted, my urologist pushed for a surgical repair of my hydrocele combined with surgical ligation of the varicocele veins again. That was Aug 30. I explained the pain & symptoms (which are not symptoms of hydrocele, or varicocele typically) and asked about the coils possibly being cause. He completely avoiding discussing it. I asked about removal and his response was that it would require “a massive incision opening up entire abdomen” because the coils are “buried so deep in there”. I got the sense he had never heard of coils being removed. No discussion of alternative treatment for the hydrocele was offered (there are other approaches than surgery). I get the sense that a lot of doctors like to sell routine surgeries and embolizations and really don’t like discussing things might disrupt their normal way of doing things.

    All that being said, I have since initiated contact with Dr. Finelli’s office (in Toronto) about coil removal and they said yes just get your GP to make a referral. I’m based in Calgary and will have to travel but definitely see it being worth the trip. Pain has been continuous throughout lower abdomen, hip, back, and scrotum and is often stabbing in & radiating from the area where the coils were deposited. I’m taking 800mg of ibuprofen multiple times per day & night to function. Add the hydrocele on top of it and the situation is less than enjoyable.

    I had another X-Ray taken that I’ll be seeing results on in a few days so will circle back with anything noteworthy from that. In the meantime, my plan is to get in with Dr. Finelli’s clinic and have the couls removed and hydrocele addressed concurrently (via aspiration & sclerosis rather than open scrotal surgery which is what my current urologist is wanting to do for the hydrocele)

    Best,

    BB

  46. Hi
    Anybody knows if the problem is the coils or if it is the embolization itself?
    I ask this because I think coils are only a type of embolic agent that can be used in embolization, but not the only one: there is a kind of glue, a quimic embolic agent, wich maybe doesn´t cause any pain or side effects.

  47. Hi Ave, any word on whether you will be getting your coil removal performed in October as initially planned?

    Anyone had success managing pain without the conventional drugs?

    Quick update on my situation; the pain has been intense enough over past few weeks that I can’t sleep or work properly. My GP prescribed Tramadol (mild opiate with ASA, basically a T3) but it isn’t very effective and completely disorients me. The combination of tramadol and ibuprofen (600mg or more) seems to be only thing that works. Unfortunately, I’m now getting weird side effects from all the NSAIDs going through me taking these meds. One example is that my ears feel like they are plugged/full a little bit like being underwater.

    If anyone on the forum has had any success with pain killers / anti-inflammatorjes that are not Advil/ibuprofen, ASA/Tylenol, or naproxen/Aleve I would be greatly appreciative to learn from you?

    Best,

    BB

  48. Hey guys. I live in South Africa and was told by my urologist that my vericocele on the left has vein diameter of 3.4mm. He furthermore noted that my left testes is smaller than the right. I have pain which is a 1/10 even less. I will be able to live like this the rest of my life if it does not get worse. My sperm parameters are completely normal. Hence, essentially I am healthy as a horse.

    I was told by one urologist to leave the vericocele and monitor the semen parameters as well as the testicular atrophy at the left. He moreover suggested that if I decide to have it repaired, open surgery is suggested. He is quite old with a lot of experience in my opinion.

    A second opinion from another urologist was that I must immediately have it fixed. This doctor said that my left testicle is very small and that, if not fixed, I will have problems with testosterone and fertility in future. He furthermore pushed only for embolization as this is apparently by far the best operation to have it fixed. He says there are almost no risk and that I should not read blogs on the internet stating it otherwise. They apparently know what they are doing and I will be fixed up in no time.

    My medical aid refused to pay for the operation. They are of the opinion that this method is still in a trial period and that open surgery is the way to go. They will furthermore pay for open surgery.

    What the hell should I do. My wife and I are worried that I may become infertile. I am affraid that I will have to live with excessive pain for the rest of my life. Do I leave it as is, go for open surgery or have the embolization done and hope that I am not one of the few with complications? Or are there a lot more unsuccessful stories than we are being told by doctors?

  49. hi bb
    yes my operation is still planned. probably is going to get pushed back one week, but i’ll keep everyone posted.
    as for the drugs: i am very anti-pharmaceuticals, in general. there are just so many side effects of prescribed drugs. i also found that they didn’t help me much. there are loads of websites listing natural anti-inflammatories. in my experience, fresh ginger juice is quite powerful and i have also had excellent results with stinging nettle for the prostate/genital area.
    best

  50. jeandre

    you should clearly avoid coil embolization.

    your second doctor has no clue about the true consequences of embolization and is an ignorant ignorant man for categorically ignoring blogs.

    the fact that you are reading this message means that the information on this website presents convincing anecdotal evidence. you can choose to believe and/or follow it or not.

    for your information, my testosterone levels dropped dramatically after having the embolization. so the “preventative measure” for future testosterone problems is in my opinion not a good reason to have the operation. KC thinks (see previous comments) that this drop was due to the original varicocele but, as it came much later, 6-8 years, i do not believe this to be the case. Since his comments, i have began semi-natural supplements according to stephen buhner’s book “the natural testosterone plan” and have been having really great results (i’m taking DHEA, vitamin B5, zinc, rhodiola and stinging nettle root). i have more energy and drive (sexual and otherwise) than i’ve had in years.

    if you are really worried about fertility in the future, instead of paying a lot of money for surgery, i would freeze your sperm. probably cheaper and without all the medical risks.

  51. Jeandre, having been through both the open surgery and the embolization for a large left sided varicocele I can tell the following:

    1. Neither of these procedures worked for me. It has recurred within 12-18 months after both.

    2. After surgery my right testicle started to atrophy… Sounds odd since the surgery was for left side? What the doctors don’t tell you is that there is risk of testicular arteries getting damaged during this operation. These arteries affect blood flow to both testicles. In my case the doctor “nicked” an artery and it has caused my right testicle to shrink.

    3. After embolization I was fine for 12-18 months until the varicocele recurred, and then in the last 3 months my life has been utter hell since something has migrated down there and I now have coils pinching/pressing nerves and other tissue. I also ended up with a large hydrocele in the process. The pain is pretty much ruining my life.

    4. Doctors are in the business of selling expensive procedures, and they also have huge egos and love to be “right”. Don’t think for a second that they will encourage you to pass on a procedure that will make them thousands of dollars in profit in a matter of an hour or two. Also, when confronted with info that is contrary to their opinion they are very, very, reluctant to concede that someone else is right and they are wrong.

    5. You only need one testical for your body to function with full fertility and testosterone levels. If you had issues on both sides I would tell you to consider doing something about the varicocele, but get your sperm and test levels checked. Then check again in 3 months.

    6. If I could go back and opt out of ever doing any of these procedures I 100% would. The risk is no where close to worth the potential / expected reward.

    7. Doctors lie. Never forget that. Malpractice and fraud litigation are very common against even the most reputable doctors so be warned that they don’t always care as much about you as they do about their own bank accounts.

    Hope this is useful info for you, I wish you the best in your journey here

    BB

  52. Hi Ave, thanks very much for advice on natural approach to pain management- I am going to try those. Congrats on getting your coil removal scheduled & fixing this unacceptable situation for yourself, I hope it goes smoothly and quickly for you and that your travels are safe around the procedure.

    Best,

    BB

  53. BB,

    I would suggest a physical therapist who does myofascial release. He helped reduce my pain a lot. I wasn’t able to sleep before seeing him. He was able to at least loosen up the muscles around the veins.

    Hope it gets better for you.

  54. Hi, my son is 15 and has a large vericosele on the left causing his left testical to be smaller than the right. He is a stage 3 and has been having pain for about 2years off and on. (Not an easy subject to chat about with your ma)
    We’ve been to his pcp and the urologist many times. 3 ultrasounds now and just met with the dr to perform his embolization this afternoon. We have NOT set an apt yet.
    Things all sounded almost to good to be true and just to easy a solution.
    I’ve been searching the web since, yours is really the only site i’ve found that has any negative results to the procedure. Thank you!
    I’m not sure what to do now. I surely don’t want my child in pain, I definitely don’t want to create any more problems or pain having the procedure done.
    At this point this isnt anything to do with fertility. I would love any suggestions I can pass along for relieving or lessening his pain until we figure out what to do.
    Thanks in advance.
    ~concerned mama

  55. Charles
    Excellent advice, i had forgotten about that. in 2012 (4 years after embolization) I found an incredible physical therapist/osteopath in Paris and he really really helped. Also a deep tissue massage therapist because i had accumulated so much tension everywhere. I still go regularly to these doctors.

  56. Charles, thanks for that helpful advice- much appreciated. Did you find that there was a period after being treated where the pain increased before it got better? I had some work done by a therapist yesterday and experienced some of my worst pain yet last night, but today am feeling like there had been a significant improvement. Thanks again,

    BB

  57. Worried mama,

    As you can gather from posts from everyone on here, myself included, the risks far outweighs the benefits from coil embolization.

    There is a method of embolization that is well documented that does NOT involve the use of coils, where only the sclerosing agent is injected. This is the only type of embolization I would even consider looking at if I had to go through it again, and even then approach with extreme caution. A medical journal study detailing this approach is here:

    https://www.ncbi.nlm.nih.gov/m/pubmed/18227549/

    Best of luck to you & your son

  58. bb
    it is pretty well documented that trigger point massage can cause muscular tension pain “flaring” up before getting better, notably in the pelvic area.
    best
    a

  59. Hello!

    I am currently 23 years old and had a left varicocele embolization procedure done by a vascular radiologist about 7 years ago. I had a pretty bad case of “sack of worms” and it was ruining my self confidence as a teen, causing pain and major discomfort. I had the surgery and besides me having normal soreness at the incision site and internal bruising from the coils being inserted inside of my abdomen and being forced around for over an hour, I have had zero pain, a successful decrease in testicle size, normal sex drive. As of a few weeks ago, I started having strange stomach problems and pain/ numbness in my left leg. The pain comes and goes, but almost makes me sick to my stomach every time it does show up. I feel pain in my groin area up to my stomach. I went to a gastroenterologist who ran blood work, mri, and xray to try and find the sudden strange pain. He suggested the pain must be from the embolization because my digestive system seems to be normal. As of now, I am living off pain killers and destroying my stomach on a daily basis. I am off to revisit my vascular surgeon tomorrow who is ” Board certified in Diagnostic Radiology – American Board of Radiology/Diagnostic Radiology and
    Vascular/Interventional Radiology – American Board of Radiology/Vascular-Intervention”. He is a leader in vascular embolization and has preformed thousands of this kind. I will show him this website tomorrow and ask him what he thinks and try to find out what is really going on. I feel all of your pain, this is the strangest feeling I have ever had in my body and it makes me an anxious mess. As per usual, sometimes messing with nature is not the greatest idea, especially when it comes to your own body. Thank you to the creator of this website, your creation has brought attention to many real issues and has made me aware as well as many other of the risks and strange side effects of this condition and surgery, Thank you.

  60. God bless the people who set up and contributed to this website. You have saved many from endless pain and may Allah (God) reward you for this. I really do pray that each and every person suffering is relieved from their pain. I have been diagnosed with a varicocele but will definitely be avoiding the embolisation after reading all that I have read here. May God be with us all.

  61. Hi guys, im from Ireland and have just had coil embolization in which about 10 coils were inserted into my veins about 2 ago. i was fully assured of how little risk was involved and now after having read these posts i will be getting them removed asap. i very angry about the the false assurance the doctors gave me and i now have to have another op just to be back where i was. does anyone here know how long it takes for the coils to kill the vein??? as i really want to have them removed rather than take the whole vein.
    any information is much appretiated

  62. hi LM
    how long ago was that? your phrase was missing a word — “2 __ ago”
    i don’t know the answer to your question. my advice, in the early stages after their placement, is to take it a bit easy excercise-wise. out of curiosity, why did you find this website? were you having pain?
    best
    a

  63. Dear people,

    I’m Ross from England. I had this same procedure performed on me in 2008 when i was 17. I now totally desperate to have it removed ASAP. I please beg and urge that whoever it is having it removed on the 18 Nov. in Paris, PLEASE GET IT FILMED SO THERE IS YET ANOTHER EXAMPLE OF HOW EASILY AND NON INVASIVELY IT CAN BE REMOVED.

    Doctors messing me around here telling me what I can and can’t feel and how I should feel. It’s a joke and an insult. If they felt it for one day, they would understand. My regards and respect to you all.

    Ross

  64. Hello Admin. My name is Davide, I’m 25 and I come from Italy. I write for the operation of the spiral removal. For more than two years that I have severe pain in the back and abdomen, and I would also like to have surgery. My urologist surgeon says that the operation is difficult and there is a risk of puncturing the intenstino and losing a testicle. What says your urologist about the risks? Can I talk to Fabian?
    A greeting

  65. hi Davide
    My surgeon says the operation is not difficult. He is convinced that it is a straight forward procedure. However, the comment of your surgeon seems logical and prudent because i have been under the impression, with no proof whatsoever except my own symptoms which may be deceiving, that the embolization attached scar tissue near the intestine and affected its mobility. thus it is logical what you say. i will bring this issue up with my surgeon, thank you.
    saluti
    a

  66. Just wondering who is the manufacturer of every one coils. Mine are Cook Nester Platinum coils. I want to see if maybe there is something wrong with a particular manufacturer’s coils.

  67. as mentioned in a previous post (i know they’re really starting to accumulate…) my coils are also nester platinum coils
    a

  68. I had a right side embolization done for a grade three varicocele. The interventional radiologist told me it was a success however absolute nothing changed in the size of my testicle. I have had severe anal itching and bleeding (i think due to damage to the veinus system as the rectum is highly involved in that) and have had pain/tightness near my left kidney where the testicular vein starts.

    The medical journals misrepresent this surgery as easy, low risk and successful. While in truth the doctors just want to bill insurance companies for worthless procedures.

  69. Hello,

    I just wanted to add my story to this board. I underwent varicocele embolization in 2010. Soon after the procedure, I noticed pain and discomfort in the area where the coils and metal devices were placed. I decided to wait it out but relief never came.

    After 5 years, the pain and discomfort had progressively worsened somewhat, and I decided to investigate. I figured out from doctor reports that the coils and metal devices used in my case contained nickel, a metal to which I am allergic.

    I then started searching for a doctor who could take them out. I was lucky because the first urologist I saw did not dismiss my problem, and, while he did not want to remove the coils himself, he directed me to the right group of people.

    Laparoscopic removal was done on November 18, 2016 (same date as the admin!) While the pain from the incision sites is significant, I can already feel great relief in the area that previously contained the coils.

    The hospital where the removal was done is Virginia Mason in Seattle, WA. The doctors who helped me were Dr Kozlowski and Dr Brandenberger. They were both very helpful, and I’m sure they would be willing to help other people with similar varicocele embolization problems, especially since they now have experience in dealing with this (I was their first case).

  70. They took out 4 pieces of metal. Three of them were medical devices called Amplatzer. The final piece was a coil. They made 3 incisions at about the same locations as yours. These are quite painful. I am taking Percocet (oxycodone/acetaminophen) every 4 hours. I do walk around my apartment as much as I can.

  71. I had a varicocele embolization performed Dec. 21st, 2015 using platinum coils. I noticed immediate relief in the pressure of my “bag of worms” and felt relieved that I had made it through my first major surgery alive (I hate hospitals). After surgery, beside the relief of pressure, another thing I noticed was a fairly constant side stitch pain that wouldn’t go away, under my ribs and above my hip on my left side. It wasn’t any pain that was over the top it just felt like unusually tight and not normal similar to a running cramp and pretty constant. Looking back, I also realized my attitude and behavior started to be more erratic, irritable, and aggressive. I am a school teacher and things would annoy me easier and I would not respond to situations in the calm way that I used to. I called the Doctor that performed my embolization and told him about the discomfort and he told me that the side stitch pain was unrelated to the embolization.

    I thought the longer I wait the better I will feel. I thought maybe this discomfort is from the vein die off or just the after effects of the stuff used in the procedure.

    Then, in February of 2016, I fell and suffered physical trauma to my chest. This pain mingled with the side effects from the embolization made me feel like I was going to die. I had terrible anxiety and could not think about hardly anything but my pain. Between February and August, I went to the ER twice, my family doctor many times, had chest x-rays, EKG, ECG, Upper Quadrant Ultrasound, and a Colonoscopy. During all of this time, my family doctor simply keeps telling me, “I am fine and that rib injuries just take time to heal.” In the last 8 months, I have thought I have had, heart problems, hiatal hernia, enlarged spleen, pancreatitis. IBS, Gluten sensitivity, costochondritis, intercostal sprain or tear with a hematoma, periphreal nueropothy, clogged lymph system and any other diagnosis that google can tell me when I type in my symptoms. Sometimes I wonder if my fall caused any of my symptoms at all and if all of my symptoms were embolization related?

    Now that I am nine months since my fall, the worst of my chest pain has disappeared and now my side stitch is more prevalent. I have a fairly constant pressure on the left side of my chest and abdomen. I have inguinal pain that gets stronger when I am active and when I sit down for long periods of time. When the inguinal pain gets stronger, my chest seems to get more inflamed and my side stitch pain gets worse. like all three are related. I do not know where exactly my coils are located, but I assume the are around my hip joint because that is where I feel the most persistent pain. I am managing the pain with Duexis. But am tired of taking pills and not feeling myself.

    I feel lucky that I have not went through some of the side effects listed on this website or other discussion threads. I am 36 years old and have a 1 year old, a seven year old, and a nine year old. I want to enjoy life and be there for my kids and not be thinking about the pain and discomfort that I am in.

    I appreciate this website and the information on it. I feel like I am not alone.

    Do you think I should give things more time to figure out if my symptoms I’m experiencing are embolization related or from my fall or should I pursue removal and put this phase of my life behind me? I appreciate any feedback. I look forward to the updates from Kevin and the Admin of this site as they update us about their post-operative status.

  72. my personal, unprofessional opinion: get the coils out asap. don’t wait for the unconfortableness or pain to go away. if the pain is in the same zone as the coils, i would be very surprised if it wasn’t because of the coils. if you want to play it safe, wait a couple months to hear about kevin’s recovery as well as my own. that being said, it takes a while to find a doctor willing to do it, so you could probably go ahead and start that search.
    best

  73. Dear all,
    I underwent a varicocele (IV degree) embolization procedure in 2007 in Italy; the doctor implanted a number of “Balt” coils in my left spermatic vein. From the moment of the operation I started feeling a sense of slight pressure in my bottom-left abdomen, basically where the coils are located, and, intermittently, a slight pain. In the years, both the sense of pressure and the pain increased in frequency and intensity.
    In 2014 this pain increased significantly and, unfortunately, I discovered that the left varicocele returned again of IV degree. Given that I did not have kids yet, in 2015 I underwent another procedure, with a different doctor and using only a sclerosant foam (no additional coils this time). During the operation the doctor saw the coils implanted in 2007 and said he was surprised about the number of coils what were used (at least 4) that cover a length of 15 cm and have a diameter of 8-10 mm.
    I am 44 and I am a very active person, I practice a lot of sport and I am very conscious about my health and fitness. At this point, both physically and emotionally I cannot stand any more the idea of having these coils in my body for the rest of my life.

    I have decided to start my journey to find a surgeon that is willing to remove the coils; I had some initial conversations with a few doctors and, as you can imagine, they all said that it is “impossible” to have the coils removed.
    Despite this, I will certainly not give up.
    I decided to share my story both to contribute to the stated goals of this website and hoping to get some inputs on how to find a way to get rid of these coils preferably here in Italy, or anywhere else. If anybody knows a doctor who can do this, please share. If I manage to find one, I will be happy to share as well.
    Just an idea for this group: would it make sense to create a closed FaceBook group? It would probably make the conversations easier. In any case I would like to thank he creator of this website an all those who have shared and will share their stories!

  74. thanks fabio for your input
    i’m sorry i don’t do facebook unfortunately but i hope this site will continue to keep up the conversation
    good luck. there is also another italian, Davide, that is searching for a doctor in italy.
    you could come to Paris to do it but it seems this would be costly
    best

  75. Hello Everyone Again
    Its Angel peace from the youtube vedio laparoscopic varicocele coil removal
    This was my first operation :
    https://youtu.be/WPk011t__OE
    https://youtu.be/xu3bNv882TI

    On December 4 2016 , yesterday , i did my second surgery with the same surgeon of the first operation Dr.Fahad Bamehriz to remove more remaining coils.
    i am doing fine , procedure went smoothly without any complications.
    Again I can feel the difference already.
    the site of removal is pain free .
    people who is suffering from these coils don’t wait..put a stop to this suffering…..go and find General surgeon or laparoscopic Urologist to remove these coils and get free from there complications…

  76. How are Kevin and the admin of this website doing in regards to the coil tortures:

    Are these things you described in earlier posts gone? I know both have said you have felt better since the removal, but I am hoping for more specifics.

    “a strange left side, dull, mid abdomen cramp,” “the crease of my waist pinched the inflamed point while sitting,” I read somewhere, someone described it, “as a deep internal inflammation? Kevin, could you describe the pain and discomfort in more detail when you said, “I noticed pain and discomfort in the area where the coils and metal devices were placed.” and is it gone?

    I am trying to differentiate from pain I might have received from a fall and pain that might be caused by my coils. Has anyone that has had the varicocele embolization had a dull ache like a pulled muscle from your left pectoral or nipple down toward your hip joint or inguinal area? When I lift my head and look up at like the ceiling, I feel the dull pain pull all through my left side. Has stress or anger ever aggravated or elevated anyone’s pain or inflammation to a higher level? Has anyone experienced pain in between ribs, intercostal pain, on your left side after the embolization procedure? Has anyone experienced a fairly constant side-stitch like cramp between your ribs and hip on the left side? Has anyone experienced anxiety after the coils have been placed inside you?

    Thanks for your responses, I am trying to figure out what has been going on inside me since I have had the coils placed inside me.

  77. Hi scott
    thanks for the inquiry
    sorry i have been very busy recently so i haven’t had too much time to post. i will try to update my pages more in depth in the upcoming days.
    my situation is complex because i had serious sharp and dull radiating pain for 2+ years after the original surgery in 2008, and slowly this pain subsided but things still didn’t feel right. notably super tightness during sports and intestinal issues. The past couple years i have not had sharp pain but it seemed that the coils affected the flow of my intestine.
    post surgery, overall this weird “something not right feeling” is much better, which i know is difficult to quantify but my abs and colon are notably much much less tight, on a daily basis.
    this being said, the removal operation has not been so perfect and without consequences as some have alluded, as if it’s quick in and out and everything is perfect.
    1) my antibiotic rash is almost gone so that’s good and on the right track
    2) i have developed a hematoma right beside the middle incision point. probably due to sneezing/laughing/being too active post-surgery. theoretically this will dissolve and disappear over time. I have also noticed some smaller nodes in the tissue below the bottom incision point. hard to tell what is hematoma and what is scar tissue forming
    3) i am experiencing what seems like interior inflammation where the coils were removed. I am trying to take it a bit easy but not too much bc i would like for the tissue to heal in a way that is adapted to normal usage. so i have been stretching, i did yoga and went running this past weekend. not sure if i should do this or not.
    4) my colon is still experiencing some degrees of tightness. seemed much much better after the surgery but now some tighteness has come back.
    will post more as soon as possible
    best

  78. Hi Admin
    Since i am A doctor , And i went through the healing process after my first procedure ,
    i Just want to clarify some of yours concerns which might be helpful ….
    1) the Antibiotic Allergy is something that could happen with anyone regardless of the procedure. And its can be treated and avoided next time .

    2) hematoma at the incision site as you said its related to the early strenuous activity so take it easy for the first few days …and even it happens it will resolve spontaneously it just need some time.

    3) total healing take time usually reach stability at 3 month .in the mean time its normal to still feel the surgical inflammation which you can take bruffen temporary to reduce and regarding the activity increase it gradually the body will adapt in a better way ….

    4) regarding the colon and bowls.. after any abdominal laparoscopic operation the colon and bowls take some time to get back to full normal function and i didn’t see your operation video so i don’t know exactly the relation of the removed coil to the bowl and the colon & how was there surgical technique because some time they dissect and relase small part of the colon to have afull access to the vein & upper coils …which in general will heal perfectly as well but also need some time …i see it all the time post operative patient who had operation around that area as well…

    So no worries ….just wait …you are still in what they call the acute phase …
    from my experience all these symptoms will go away within 2 to 3 month maximum…..
    Take it easly ….

  79. Hey admin it’s Mike from Toronto. When I said surgery went well and with out complication did not mean I was back 2 normal 2 or 3 days later. I meant that there was no complications with the surgery and that it took some time to recover like any surgery would. I agree with Mohammad in that you must take it easy and give your body a chance to recover. It’s best to ease into resuming your normal activities but don’t push it.

  80. Thanks Mike for the comment and i can say that things are already starting to get back to normal. i am still quite busy, but i will write a status update this weekend
    all the best

  81. I had a varicocele surgery 10 years ago, my life changed and have never recovered, I don’t know if they a placed coil, is there a way to know? Like with x rays? Since the surgery I have suffered a lot of symptoms that have ruined my life, some veins around the shaft and in the left part of the penis dilated, I feel varicose stiffed veins in the left hip bone, more varicose veins on the left last rib, a lot of chronic fatigue and fibromialgia symptoms, brain zaps, neck stiffness, eyes sight problems, hearing problems, muscle stiffness, cramps, bruxism, temporomandibular problems, anxiety, depression, tingling sensory feelings around my head, irreality and desrealization perception, irritable blader and colon, compression around the head, neck, memory problems, balance problems, during all these years I have tried multiple treatments like anxiety pills but nothing has helped, seen a lot of doctors without results, do you think that it is the coils messing up my body?

  82. hi Daniel
    Yes if they placed metal coils they will be visible via x-rays. if they used sclerosing agents, i would guess that the embolizations are not visible via xray.
    and yes, obviously we think the coils are messing up your body.
    to respond to your comment, your symptoms indeed correspond with many symptoms of people who have commented on this website, including myself.
    i have a suspicion that embolization has a serious impact on testosterone levels, which in turn has an impact on many of the things you mentioned. For me, it felt like i was “dead” inside. No drive to do anything.
    Could embolizations have a negative impact on testosterone over time? Testosterone is a hormone that affects men not only sexually, but has a huge impact on many aspects of the body, hormonally, physically and metabolically. (see for example http://www.healthline.com/health/low-testosterone/effects-on-body ) . It seems logical to me that changing the blood flow to or from the testes could have an impact on testosterone. (admin note: see next comment for more info)
    Please note : these are not professional opinions, so i do not know if scientifically they are solid.

  83. Hey admin the actual purpose of the embolization is to block the vein not the artery. The artery is what supplies blood flow to the testicle and the vein pumps deoxiginated blood away from the testicle back to the heart. The embolization is done because a faulty valve in the vein is causing blood to drain back down to the testicle causing pooling of blood and excess heat.

  84. thanks for the clarification mike
    indeed you are right about the varicocele explanation.
    i am aware that certain scientific studies have proven that embolizations actually increase testosterone (see http://humrep.oxfordjournals.org/content/19/10/2303.long for example). but this study measured before embolization and 4-6 months after. it is not impossible that i happen to fall in the 3% of population (according to their study) that had a negative testosterone impact after embolization, or that things change after more time.
    personally, i noticed a distinct change in energy levels after about 2 years after embolization.
    is this my isolated case, is it related to pain or other complications, or even other unrelated coincidental occurrences? hard to say.

  85. I had varicocele embolization done on me. Before this procedure i had pain which come and go and never feel worm like thing in my scrotum. But after procedure i start feeling bundles of worm like thing in my scrotum and on both testis.from few days i am having l leg/thigh pain and lower back pain. Did any one feel lyk the way iam feeling post embolization.
    Mohamed and admin can u please tell my after your surgery ( removal of coil) is that vein has blood flow or it dead.

  86. Hi Rahul
    Why did you get the embolization if you didn’t feel the “worms” in your scrotum before the operation?

  87. Can you see if Kevin will give me his email. I want to see how he is doing with the coil removal recovery? I am interested in flying to Seattle to have my coils removed. I am wondering how his follow up has been and what his pre-removal consult and surgery prep was like.

    I would really like to locate a doctor closer to Ohio that will remove the coils, but so far I am unsuccessful.

    Toronto is not to as far as Seattle, but I would have to have my passport renewed. I also tried to contact Finelli and didn’t have any success. I talked with the schedulers at Virginia Mason and all I need is an order from my family doctor or urologist to get the ball rolling with Dr Kozlowski and Dr Brandenberger.

    Thanks,
    Scott

  88. I do have a pain which is of extreme nature sometime, during color doppler test it show varicocele of grade 1 , my doctor insist me to get it repaired by embolization.

    Now i having i strange kind of pain on my leg/thigh and some time lower back pain, i am afraid that it is related to embolization.

  89. Hi Scott,
    I have tried to contact Kevin, as of now to no avail. So I don’t know how he is doing. I will keep you posted if he responds.
    Best
    A

  90. Rahul, do you still have the “pain of extreme nature” or did it go away with the emoblization?
    a

  91. Does anyone know if the coils are 100% platiinum or are they mixed with other metals?

  92. I had a varicocele embolization procedure (single cool / left side) in August of this year (unfortunately prior to finding this site) – within 6 weeks I had developed erectile dysfunction – something I have had no previous history of. I am mid 40’s have normal blood pressure, no diabetes and all my blood test and testosterone levels checked out normal. I have no other underlying health problems.

    I have seen 2 consultant urologists, a specialist andrologist and spoken with the interventional radiologist who carried out the procedure (who reviewed the video of my operation with a colleague) -all of them tell me there is no possible link between my ED and the varicocele embolization. This is either an enormous coincidence or I am not getting the full facts. I would be very grateful for any similar experiences or thoughts on my position.?

    I don’t however experience any back, side or abdominal pain that others have described here.

  93. Hi Chris
    i have definitely experienced degree erectile dysfunction. this began about 1 1/2 years after my embolization. see section “NUMB, DEAD FEELING” in the “full story” page on this website
    as mentioned in previous posts, i have suspicions that embolizations affect testosterone levels in a negative way, at least for me, though certain scientific studies have shown that the opposite seems to be true, at least short term. because they affect blood flow to/from the testicules, this does not seem impossible. but i have no scientific evidence for this statement, just my own subjective opinion.
    good luck, and i hope you don’t have any pain issues in the future.
    a

  94. I hope I am not responsible in any way for your google censorship. I am a teacher and had time off work for the holidays. I contacted a couple medical malpractice attorneys via contact forms online, mentioning the againstvaricoceleembolization website as proof that their are more like me. My conspiracy theory side of me thinks that maybe one of those websites works for the medical industry and with a company like reputation defender pushes unwanted results off google’s search list.

  95. scott
    thanks for the link. i have filled out the google form but i have no idea if it will work—that page is for copyright infringements, which is obviously not the case here. but i gave it a shot.
    it’s quite frustrating for such an informative and beneficial site to be blacklisted.
    a

  96. So I tell you about my “short” story.
    My English is not fluent and I apologize.

    In may 2014, a bilateral varicocele (grade > 3!) was diagnosed by ultrasound.
    My spermogram was a disaster !

    We had then a “baby plan” with my wife.
    So I quickly decided (I was 38 years old!) to undergo a first operation in the left side.
    2 left spermatic veins was embolized “with succes” accordind to the Radiologist…

    However, in the days after I left hospital, I felt some discomfort in different areas : pubis, groin, pain went up along the right side.
    It was not an unbearable pain, but my movements were annoyed.
    It was a strange sensation, difficult to be described.

    Unlikely to most of the stories I read in your webside, I felt pain on the side where the Radiologist had opened to introduce the catheter, and not on the left side where coils were placed.

    I felt permanent symptoms since the embolization : digestive problems, important sexual problems, fatigue chronique syndrome, pelvic pain.

    In august 2016, a chronic prostatis was diagnosed. (without a bacterium was identified)
    Il feel to the famous “numb” as you said in your story, a loss of sensibilty in the pelvis.
    It’s difficult to say if the relations exists between coils and the prostatis.

    My Urologist recently said my that coils could be involved in my pains.
    Coils might probably stick to muscle tissues and disturb moves.

    So I ask you these questions :
    What do you do to reduce your pains ?
    Finally, did your coils be removed ?
    If “yes”, do you feel better after the removal?
    Do you think that coils could generate a chronic prostatitis ?

    I’m suffering more and more each day… My life is a nightmare. Thanks for your reply.

    Yours sincerely

    PS. Could you please give me the link of the “story of Fabio”

  97. My family doctor referred me to Virginia Mason to get my coils removed. They basically said they would need to do a consult first to diagnose (medically) why and recommended that I have a consult in Ohio before I fly to Seattle and waste the time and money. I called my original urologist and radiologist team that recommended and performed the embolization in the first place. My radiologist ordered a ESR Sed Rate test and a CT Scan to look for inflammation and abnormalities. I am expecting both to come back normal and be stuck with my coils. I have looked into a MELISA test for metal hypersensitivity towards metal. Those of you that have got the coils removed, what testing (positives) have you had that triggered a doctor to order the coils removed? Thanks.

  98. Why don’t you call or email Google. And ask why the site has been black listed. There are a host of potential reasons and it may have nothing to do with the content. It might be a simple issue to correct.

  99. hi
    i have already done a fair amount of emailing to google, via all the various feedback pages; they haven’t yet responded. as for calling, i don’t know where i should call.
    best
    a

  100. salut michael,

    speaking for myself, yes the removal of the coils helped me much and i would do it again. it helped reduce the pain, yes, and above and beyond, it reduced this weird sensation of having something foreign in the body and that something is wrong. also, my removal surgeon confirmed that the coils were attached to the colon, thus confirming my suspicions that the coils had a major impact on my digestive system. since removal, my digestive system has been much more regular.
    the removal recovery has not been perfect, see http://againstvaricoceleembolization.org/?page_id=111 for more info, but i have no regrets and would do it again.
    you can find fabio’s story here: http://www.topix.com/forum/med/urology/TUUCU6D07IG3MPM8J/p5

  101. Good morning,

    Scott,thanks for your reply.
    If I understand, your pain was due to your hypersensitivity towards metal.
    As far I’m concerned, my coils are Nester. (100% platinum ?)
    However, did your coils play a part in your pains too? (I mean, a “mechanical action” on your pelvis, independently of metal itself )
    Do you feel really better after your coils were removed ?

  102. Hey guys,

    I’ve been keeping a close eye on this website pretty much since I’ve had an embolization done on november 8th. The embolization itself apparantly went well even though the radiologist had trouble getting to the vein and it took a lot longer than it usually does. After the treatment I only had some lower back pain but on the 2nd day I also started to feel pain in my lower left abdomen and I didn’t feel well. It basically felt like a needle stinging into in my intestine. That’s also when I first stumbled upon this website and I wish I had before because then I would’ve just gone for the varicocelectomy or even natural treatment and spare myself a lot of trouble. My urologist thought that perhaps I had a trombose in my kidney vein so I got sent to the ER and got a CT scan of my abdomen and they couldn’t find anything serious. Back at home I discovered that when I lay on my left side the pain would subside and so I could sleep. The pain then diminished within a couple of days. A little over a week later the varicocele re-emerged with a vengeance. The varicocele pain subsided after some time but the pain in my lower left abdomen and back came back to hunt me and I’ve been experiencing it interuptedly and in various degrees ever since. It’s a very nasty kind of neuropathic pain and It’s most often triggered when I sit. It basically feels like my body is sending so many signals to my brain that I can’t think clear, concentrate and have trouble with short-term memory and it makes me feel horrible. Everytime it happens it feels like as if the coils come into contact with a nerve or something. Anybody else experiencing this as well? Just like the admin I’ve also been having constipation and my abdomen often makes weird noises and I sometimes have cramps. It also feels like my heart is pumping a little faster than normal. All in all this is slowly tiiring me out tremendously, especially because I have a lot of trouble sleeping and I’m often anxious and depressed. Like others it’s ruining my life. Luckily my urologist has offered to try to remove the coils, but he doesn’t quite seem sure on how to do it yet. He was thinking of just removing the vein in which the coils are placed. I’m not sure whether that will be a good idea even though the vein is supposed to have died off the way I understand it. I’ve told him that these procedures have already happened with success and I’m going to give him the names of the doctors who performed it next time I see him as well as a link to the videos. I hope that will make a difference.

    Last but not least I want to thank the admin for setting up this very helpful and important blog and I really hope you’ll keep it running for as long as possible. I don’t know where I would’ve been without this. Probably losing my mind and instead this has helped me make sense of it all and it’s reassuring knowing that there are many others with similar issues.

  103. Hello, I had this operation back in 2003 and I had a lot of pain back then, but now the coil has failed and the vein re-built itself.

    I was ok living with the pain of the new re-built varicocele (I just wear tighter pants) but now I don’t want anymore kids, so I was booked in for ‘the snip’. I had an ultra sound to confirm the coil has failed and that to get the snip I need another coil… As the varicocele needs to be removed first

    Now I’m not sure I want another one as the first failed? And I don’t know what to do?

    Any advise? I don’t know what to do about the old coil and if I should get another one?

    Thank guys

  104. hi james
    could you please specify if your pain in 2003 was post-operatoire from the embolization, or from the varicocele itself? if from the varicocele itself, have you ever had coil pain?
    obviously i, and probably most people on this forum, would suggest NOT getting a(nother) embolization.
    a

  105. Hi guys,

    same operations in oct 2015 and same answer from the radiologist. “I understand you have pains but i dont understand why coils give this kind of problem, that never appear”. And my urologist told me “you must see with the radiologist . I can’t do anything for you and it’s not me who made the surgery”. Good guys. I’m starting to go in justice but before i want to feel me better. In france we have 2 years after the surgery to go in justice.

    For me, two specials events :

    – a big pain in my back at the end of the surgery, my leg move up but the radiologist didn’t see anything… he told me 1 minute before “may be you can feel a little burn”. Yes very little…!!! I asked to an other radiologist and he didn’t understand why i had a big pain during surgery…. i think he put coils so close from the psoas.
    – The clinic loose my radio … Software problem… yes it’s possible…Now it’s difficult for other urologist to understand the surgery. Scan is not enough.

    I met an urologist in Paris who told me that he can removed them but i’m afraid to resolve my actual problem and start with other problems…

    Actually my most important pains are on my vertebral column (burn) and the night on the left part, i think it’s psoas muscle but i’m not sure.
    I saw an osteopath 2 times 3 and 5 weeks ago and a beginning of pain appear on my right.

    Well i dont know what to do…

  106. Hi Stephane
    Which urologist in Paris did you see that is willing to remove the coils?
    If you go to court (justice, as you say), i would be happy to testify (i am based in Paris).
    best
    a

  107. I had a rather large varicocele from the age of 13. Like most teenaged boys, I was very insecure about it and though I learned to cope it remained bothersome. 27 years later, at the age of 40 a urologist told me that it could be dealt with.

    So, I had the embolization procedure done in March of 2014 at the Rocky View hospital in Calgary Canada. My doctor (Dr. Gotto) told me it was safe that it was being done every where. The surgeon, (Dr, Welsh) reassured me that it was completely safe. Two years later however, I started experiencing pain, and erectile dysfunction.

    When I contacted my doctor about it, I was denied service. In fact, both doctors who recommended the treatment refused to see me. I went to various clinics and emergency wards to get referrals to another urologist.

    A year later I met (Dr. Barr) who works for the same hospital. Before I could raise any concerns, he informed me that the pain was caused by a hernia I had had and that the coils were impossible to remove. Clearly, he had an explanation to give me before he heard what I had to say.

    My suspicion is that all three doctors (and likely the health system) are aware of this issue and are playing the denial game. Like many people I used to trust doctors and the Health Care System. Now I realize that we are all guinea pigs to them.

    I wish I had been more distrusting and done the research before having the procedure. It seems I will have to live with this issue as private Health Care is denied in many parts of Canada.

    Hopefully, our stories will prevent others from having it done and perhaps, one day a class action lawsuit against the Hospitals that promote this procedure can be filed.

  108. The doctor i have consulted for coil removal is Dr Belley at Diagoneses Hospital in Paris 12 but i want have a second advice before surgery because for my case i dont know if its a muscular problem to disturb my body after the surgery or if it’s an allergy with the coils. they are not in titanium but in a polymer material.

    for the second question, actually i just joined a lawyer who is depending of anadvi to have an advice. i will have a meeting in 2 weeks.
    Anadvi is a special community of lawyers who work on bodily harm after medical surgery.

    best

  109. Stephane
    It is interesting to know that your embolization is not titanium but in a polymer material. So it seems the problem is not just with the metal
    best
    a

  110. Hi guys, I’ve been lurking this page for a long time. I’m 21 with a varicocele. I understand that I should avoid the coil embolization, but what about liquid embolization and varicocelectomy? Or should I just keep my varicocele? If you’re wondering why I was worried about my varicocele it’s because I heard it affects testosterone, testicle size and sperm quality.

    Thank you guys

  111. Hi,

    I’ve been looking into having an embolization, but I have decided to reconsider after finding your website. Just wanted to leave a message thanking you all for sharing your experiences.

    Cheers,
    DP

  112. stephane yes no pain here
    i had a bit of pain at the muscle scarrring located at the second insertion point but i have been doing yoga since the removal and it’s loosened up considerably so i no longer have this pain… even while running or stretching.

  113. albino,
    i advise against doing anything just because you’ve “heard” a varicocele affects testosterone, etc. if you have pain, or have scientific analysis showing you have reduced sperm quality, then think about doing something. i don’t know about the non-coil operations (although stephane has a non metal insertion and he has been having extreme pain).

    **if you’re subconsciously thinking of getting operations to try to help other non associated problems of self-questioning** : i suggest accepting your body as it is, and anyone who loves you will do the same.

  114. Hello, I am still trying to figure out what is going on inside my body. I am getting a MELISA metal allergy/hypersensitivity test done to see my blood has any responses to metal that might be causing my fibromyalgia-like symptoms on the left side of my body. MELISA company out of Germany has found metal hypersensitivity to cause many of the things people describe on this website. While a allergic or hypersensitive reaction to platinum is very rare, most metals coils are not 100% platinum. Cook Medical has stated that “The Nester Embolization Coils are made of Platinum wire (specified as 92% platinum and 8% tungsten) and Nylon 6,6 fiber. The “PGM (platinum group metals) impurities shall be limited to 1000 maximum parts per million each.” These include rhodium, iridium, palladium ,and ruthenium. So there might be very small amounts of these in the raw platinum that we receive.

    I am also testing for mercury, cadmium, and lead. If my blood does not react to any of the metals then I will think that it is an energy block in the spleen meridian that is messing me up. My intercostal pain and rib pain has gotten less severe over the last couple of months which makes me think it was fall related. I still get flare-ups of strong pain and anxiety but am dealing with it better, knowing that it eventually fades to a nagging new normal of not feeling myself as the lesser me. I have taken myself off of all medicine and am only taking St. John’s Wort, Ashwaghanda, and Nettle Leaf Tea. The three have helped greatly with anxiety, inflammation, and mood-leveling.

    I appreciate this site and the feeling that I am not alone and hope to have my coils removed as soon as I can.

  115. I am very glad I have found your website, but sadly I have also had my varicocele embolized already. I was told by the worker’s comp system that I had significantly aggravated my previously unknown complex varicocele and it took legal action before I could a doctor to patch me up. Having gonads the size of softballs was incredibly unpleasant, and to find that urinary issues would leave me struggling (maybe for the rest of my life) with the need for adult diapers (windeln, panales, etc) has been dire.
    I could find virtually no frame of reference when they finally agreed to help back around 2011, and I hope this board stays active so folks know what to expect.
    I found that the complications of my surgery left me with the feeling of a “mourning star” embedded in my abdomen, and as my bladder fills the pain increases. I was also told that the embolization procedure could not be causing all of that, yet I was training for a Marathon before the injury, and now 6 years later I cannot distance run without feeling that intense pain in my side/abdomen. I have two coils: one starts just below my rib cage, and the other is in my lower abdomen.
    Although coping with naproxen Sodium and/or ibuprofen has helped, one of the few NSAID methods I have found to help cope is to wear diapers to help support and cushion my sensitive parts.
    Has anyone else found relief through the use of diapers, or am I still part of the 1% of the world struggling to cope in this manner?
    Thank you (Danke) for reading this far in a very long and informative website.
    -Eric in Ohio

  116. Michael from Paris

    Just one question.
    If coils had migrated in the body, can i see it easily in a radiography?
    Or is another scan / ultrasound necessary to see it ?
    Thanks for your responses

  117. Hello fellas,

    Firstly I’d like to thank the creator of this site on behalf of everyone he’s helping, you’re are a hero Admin!

    After reading the full story and all comments, can we conclude that the coils, regardless of what material they are made up of, can cause the same health issues?

    I myself had a massive varicocele in my left side which caused big pain and extreme discomfort. If I kept cooling it down and stopped sitting (laying down more), which made it diminish over time. If I performed side-crunches or similar exercises, my condition got worse. I also noticed how it came back quickly if I squeezed my penis. How is this even possible? I thought the veins going to your testicles are completely secluded from the penis, please correct me if I am wrong. Since it recurred easily, I decided to have a varicocelectomy first because I read somewhere that embolization can cause cancer. Why it can cause cancer, I do not remember, but perhaps due to what’s being explained on here (metals disturbing the inner organs?).
    You can also read on many places that an embolization has a much higher success rate if you’ve gone through a varicocelectomy first.

    Surgery went okay, but I had severe pain first week. My varicocele became smaller with time but is still present today minus the pain. Overall I feel okay today but still cannot go back to side-crunches and I have to be careful with my penis (how fun is that right?). I was reading on a few forums that varicocele in most cases is due to an unbalanced pelvic floor. I’ve tried certain yoga exercises to stimulate it but without success. Perhaps this is something that can help you guys, do some research.

    Since it did not help me, I was therefore looking online for skilled interventional radiologists to visit for an embolization, but after coming here I got cold feet.
    I still need to correct it because I also need to reduce the excessive scrotum skin that came along with years of this hell. Having one nut hanging really low can be potentially dangerous when you keep sitting on it by accident :P. But before going through with a reduction, I first have to have any varicocele removed according to my surgeon.

    Thoughts?

  118. Hi michael
    thanks for the kind words. unfortunately i don’t have any experience in large varicoceles, mine was rather small. perhaps someone else could advise….

  119. @michael, in my opinion: you can see the coils in an xray but there is no way to tell if they have migrated.

  120. @eric, i’m sorry i have no experience or advice in this matter, though i really liked the “mourning star” metaphor. a german translation i’m assuming; quite nice

  121. A follow up to my last message. I know most everyone on here are men. I had embolisation coils put in for varicose veins and have awful autoimmune problems ever since. The coils were Balt platinum and tungsten but maybe had trace amounts of other metals. I would love to speak to Cindy above as her story is similar to mine. My condition continues to deteriorate sadly. I feel I’m dying very slowly. I’ve tried to find someone else to have a go at removing the coils. I consulted another vascular surgeon who thought it was outrageous. He said he would try to find someone willing to try. Never heard back. I consulted 4 solicitors. None wanted to take on the case. A lovely doctor I see in Harley st. A dr denning helps me and referred a patient to me who cancelled the surgery. I felt I’d saved someone’s life. I’m still desperate to find a surgeon. Meanwhile my gut is appalling. My muscles and spine are degenerating. My spleen meridian is blocked. I see the radiologist who did this is still using coils but different ones. He did not have the courage to face me ( dr Lopez) he’s written papers ! I’ve amassed so many papers. Metal should not be in the human body especially if you have metal sensitivity. Are there any pioneering doctors out there. There must be?? Any help advice please.

  122. – So it’s the actual migration that is dangerous, not the material being inside the body itself?
    – Can the coils migrate months post surgery or only during the healing phase?

  123. Coils can be seen on xray. To see if migration has occurred you would have to have the radiologist original coil placement scans and compare the position to your current xray. Once the tissue in the vein has clotted and scarred down I would see migration being rather difficult. I think that is why they tell you to take it easy for the first few days for the coil to set and clot.

  124. I was due for a Varicocele embolisation next tuesday. I just phoned the hospital to highlight my concerns following the finding and reading of this blog this morning. Fortunately my operation has been cancelled due to the doctor being away and is now penciled in for next month.

    Following the ultrasound results i was told that the varicocele on my left testicle is more pronounced than any the specialist has seen before (20 years experience) and whereby the ultrasound results are often hard to read, my varicocele was very engorged and the specialist feels the procedure will be very helpful to alleviate pain.
    About 6 months ago i was struggling with aching and pain worse than ever before, i have had the varicocele diagnosed 6 years ago ( im 31). This led to a disinterest in sex due to the subsequent pain following ejaculation, as well as occasional pain in daily life with exercise.

    Following the reading of the blog i am now very alarmed and don’t know if i want to go through with the embolisation.
    Major concerns i have arise regarding testosterone levels. im not a particularly hairy guy and not a very tough fighter of a man, whether this is due to a low testosterone level i am unsure.

    A few questions-
    -Do any other varicocele sufferers experience a dull pain following sex?
    -Is the pain constant or comes and goes? (mine occasionally hurts when doing strenuous activities, i work outside with animals so am quite fit and active.)
    -Does varicoceles lead to occasional ED? or could this be unrelated?
    -Left untreated will the pain increase over time?

    Many thanks for a very informative blog and for others sharing their experiences.

  125. nodnyl
    it goes without a doubt that varicoceles are not pleasant. but embolization is worse. i, and others here, know from experience. personally, i am not hairy, but i am a fighter. i can say that my T levels dropped dramatically after my embolization although the cause and effect relationship is not certain. T levels are also related to stress, and physical conditioning, and arousal….. so if getting an embolization worsenes all of these by creating nightmarish pain cycles, T levels will probably decrease, as it did for me.
    i wouldnt do the embolization if i were you. look into direct surgery perhaps, or being at peace with your body.
    a

  126. nodny,

    there is another technique to reduce varicoceles. it’s possible to have a surgery to close the vein. There are other complications but not the same.
    For T levels, i didn’t get a blood test done but i think it’s more of a stress reaction.

  127. Thankyou Admin and Steph. I have a meeting with the doctor doing the procedure today. I will be highlighting my concerns arising from this blog and will either seek alternative surgery or as you say, be at peace with my body!
    Id be interested in anyones use and experience of Vitamin C products for Varicocele pain relief as I have read this online and would like further information.
    Thank you for your feedback and for the website, I hope it can assist others.

  128. I got my MELISA (Memory Lymphocyte Immunostimulation Assay) today and am strongly positive towards Tungsten and Iridium, two metals in my coil (8% Tungsten, & trace Iridium). Considering everything I have read, I feel convinced that most of my bad health since my embolization in December 2015 starts with this reaction. Within the past two months, I had leg pain and went to the ER to find out that I have a DVT. I feel that my blood just hasn’t been right for quite some time. I feel like my body has just been fighting something. I have read about fibromyalgia and histamine reactions and many symptoms line up with what I have dealt with some say a cause for both might be metal hypersensitivity. I hope that this result opens the door for me to have my coils removed because every attempt I have made this far has failed. Has anyone else had a MELISA test done? Has anyone else had blood clotting issues?

  129. thank you very much
    you guys helped me before i take that dicision
    I WILL NOT DO VARICOCELE EMBOLIZATION NVER EVER
    god bless you guys
    and please try publish this page to everyone
    doctors should be sued for this

  130. I had a coil migrate to my right atrium and embed on the wall and coils in my pelvic I get pain in chest and my white cell count has dropped to 0.08 could this be linked ? I am in isolation in hospital

  131. i’m sorry to hear this stuart. i don’t know much about white blood cell counts sorry. perhaps someone else?

  132. Dr. Kevin Petersen of No Insurance Surgery in Las Vegas NV removed my embolization coils.

    His practice is based around removing faulty hernia meshes – which cause many similar effects to coils. He is a very accomplished general surgeon.

    His website is noinsurancesurgery.com – he and his staff are very good people that saved my life.

    He removed my mesh in 2014 and my coils in April 2017. My 6 embolization coils were installed because the faulty inguinal hernia mesh crushed my left spermatic vein.

    I developed metal poisoning, eosinophilia, prediabetes, and constant inflammation after having the coils installed.

  133. Great to hear chip. i’ve added his name to the doctor list. keep us posted on your recovery
    best
    ave

  134. My coils have just been removed on both sides yesterday. I’m now “coils free”! I’m suffering from the operation. Is was a very difficult surgery. I have to take medicine to reduce my pains. A coil was taken in my muscle and involved chronicle pains and difficulties in moving. Best

  135. Chip & Michael,

    Could you provide more information on the removal method? Open surgery or laparoscopic and where the coils removed or the vein?

    What where the symptoms of the metal poisoning, eosinophilia, prediabetes, and inflammation? Was it determined by blood tests? Was the inflammation noticable by c-reactive protein (CPR)?

  136. I know how u guys feel , varicocele alone is a pain in the ass , but with the emboization , it just makes it worse , I got my embolization done back in 2011, it’s been 6 years and my varicocele pain never fully went away , I check for reoccurrence , and the docter’s say my vein is normal , now I realize that the pain that I get is from the embolization itself , I get lower back pain, groin pain , left and right testicle pain , same pain like varicocele sometimes it comes and goes , I’m 24 years old, and I hate living this life , and docter’s dont help

  137. @Donald : i think you mean “i will cancer my embolization right away and try to get laparoscopic surgery” or another type of direct surgery. unfortunately i cannot advise on any other type of varicocele operation, i have no expertise or experience in the matter.

  138. I was scheduled for a bilateral varicocele embolization last week but cancelled it after finding this site. I told the doctor I have an allergy to platinum so he said he would use titanium if necessary. Is titanium just as bad? He wants me to reschedule. Thank you.

  139. Usually I am a victim of the doctors but luck was finally with me that I found this site just before my scheduled embolization with coils. I cancelled it now for good. I wish you all speedy recoveries and peace. At least know that I read your stories and you saved me from going down the same road. Thank you so much! God Bless you!

  140. Hey Admin. It would be nice to hear some follow up on the guys who have removed their coils. How the recovery went and how they feel now.

  141. Hi my name is George and I have posted on here a couple times in the past year because I just had a horrifically experience with a varicocele embolization. I had lost hope for a while and I was in quite a bit of pain and unable to exercise. But the thing I want to make clear is not to lose hope. I really freaked myself out and I did have a lot of quite a bit of pain but I let myself get to the point where I lost hope.
    So for my case and I’m not saying that everyone is in the same situation but for me it wasn’t the actual coils that were causing the pain it was the freakishly tight muscles around the coils that my therapist was able to get loosened up and release. So before you go get all your coils removed try just having a therapist get those muscles released first. My therapist said she had never seen anything like this before but my whole left side was so tight around those coils and she has been a therapist for 30 years! the good news is she was able to get them all to release and loosen up. It took about 12 visits to get them all to loosen up and stay loose.
    But I agree that if I had the choice I would never do this again thank you so much

  142. hi george yes i confirm that deep tissue massage also helped me greatly… though for me it’s a half solution, you still don’t feel quite right. removing the coils took me the rest of the way

  143. Hi All, I have had the same procedure and was wandering if any one have had problems with median nerve. I think my coils have attached to the nerves and now causing untold pain. I am having so much problems since I had this done and really wish I never did it.

  144. I am 46, live on the Wirral in the UK. Since I had the embolization done I have been diagnosed with Bowel disease (Crohn’s), Peyronie’s disease and Carpal tunnel
    I was hoping someone here could let me know if they have tried pain relieve injections around the site of the coils. I have an appointment booked next week to have both sites injected. This is one of the final attempts by the doctors to try and help stop the pain I am feeling. I had both sides done in 2012 and had pain as soon as they pain meds wore off. Later on I found out they punctured a vain on the left side in the process and the doctor tried to hide it. It took three years to get an apology but that does not help with the pain I have to suffer every day. My own doctor is trying to help and I have asked for them to be removed, but I kept been told it is not possible. Reading your site gives me hope that one day I can get mine taken out. Thanks again for this informative site and good luck to us all.

  145. Had varicocele embolization carried out in Nov 2016, due to a left-side varicocele diagnosed in April. Immediately felt relief from the testicle ‘heaviness’ but discomfort immediately introduced on the left flank. Felt like a stopper in wine bottle, which, I guess, is what has happened with the coils in place. Kept telling myself that the discomfort would ease off and tried to reassure myself it would eventually sort itself out but six months down the line it’s still there. There are days I wish I could get a knife and ‘dig out’ the irritation. Have felt significantly stronger with more energy, stamina and strength, as the varicocele is no longer interfering with testosterone production,I guess, but mentally I’ve become an anxious person and find it hard to ‘let go’. All the previous activities I enjoyed beforehand – swimming, yoga, chess, used to lead to a contented mental state but now it’s impossible to ‘get in the flow’ with activities. It’s as if the coils are constantly stimulating the body – and when you try to do something which in normal circumstances would lead to a relaxed state of mind, your body is kicking back. It’s obviously distressing as the benefits are there, but I’ve voluntarily elected for a procedure which has had a significant effect on my life. I’ve not had a follow up urology appt so am pushing to have a check up to see if the coils have migrated. My chiropractor can see there’s a lot of left sided tightness and I agree with the previous poster, George, that if you subconsciously avoid moving part of your body it will tighten up and that is also part of the problem. Next step, I guess, is looking at laporoscopic removal, unless there’s someone here who can say that things got better after a year, post surgery!

  146. very good description, jh. this corresponds with my feelings/experience. i wouldnt wait to take them out, i felt the difference immediately after the removal.

  147. I can attest to that. Exactly the same experience. The frustration of wanting to cut the coils out, the tightness/numbness almost dead feeling of the abdominal muscles and the constant stimulation. The issues are excarcebated when sitting and lying down. It feels like an electric wire that puts my body in overdrive. Standing relieves the stress and sitting, lying down is bearable on an empty stomach in my case so I’m fasting most of the day. I feel the coils sting and have cramps as well occassionally along with impaired bowel movement/constipation. I think some of the coils attach to muscles and/or the intestine. I’ve been ‘lucky’ that the upper coil was placed partly into the kidney vein which is why the doctors to which I’ve been referred have decided ro remove them. It’s been a nightmare at times the past six months since the embolization. I feel like I’ve been a guinea pig all this time. On top of that the varicocele returned a week after the procedure so it’s been useless also. The consequences of the embolization have been a very hard lesson learned.

  148. I was a day away from doing a varicocele embolization with coils last month when I read this forum so I cancelled it immediately.
    Since then I have been looking for IRs who do varicocele embolization using liquid embolic agents and not coils. I found one this past week at Henry Ford Hospital in Detroit. I spoke with him at length and he said there is a field of IR called AVM for arterio venous malformation. Basically it deals with cross talk between veins and arteries in the body and can be fatal.
    Over the years the IRs have developed liquid embolic agents like glues and sclerosants to seal these things. Coils are not practical. This doctor performs those procedures usually in the brain and heart. But he also uses these liquid agents for varicocele embolization as he says it gives him better control for closing the secondary veins that open during the procedure.
    I wanted to pass this on for comment as I am now thinking of booking a procedure with him.
    Best of luck to everyone and thanks for warning me beforehand about coils.

  149. Hi jh, this is George again. To give you some hope, I was still in a lot of pain at 6 months. I could not exercise and this gave me a lot of anxiety. My pelvic floor physical therapist also told me that my left side was freakishly tight (where the coils are) but she was a to get them to release and stay loose. It didn’t happen overnight. I saw her about 13 times and delt with a lot of pain along the way. I went up to mayo clinic in Minnesota and he said he would take them all out but he estimated that my pain would start to subside after a year after the inflammation starts to die down and the coiled veins get less ” sticky” is the word he used. He said there is a lot less risk after a year because the veins can stick to vital organs. But start to let go after about a year Nobody ever told me that! He was right though..things did get better after about a year. I am starting to jog and swim again! So I would recommend waiting at least a year and find a great physical therapist. You will have to decide whether it’s worth the risk. I’m waiting at least a couple years because I finally have my life back and don’t want to mess that up. I guess time will tell if I ever decide to get them out. I wish you blessings and hope for your sake that your pain gets better. Don’t give up!

  150. Apologies, didn’t mention my location earlier, I’m in London, UK. Have been making enquiries about private treatment, while waiting for my first check up post embolization, which I had done in November. Quite a wait! Will have to check their name, but the Nuffield Woking Hospital has a laporoscopic surgeon who has carried out coil removal. Ballpark figure for the op is £3,500, so something to consider. Still having issues getting into the flow with activities. Very difficult to put into words, but I’d describe the sensation caused by the coils to be one of ‘mental insistence’. I’ve noticed that I no longer daydream in the same way, or lose myself in a book in the same way. I can see the words in the page but can’t enter into my imagination properly. I’m assuming this is down to the coils providing some disruption to the brain’s ability to switch off/lose self consciousness, and this has been a constant since last November. Thankfully there’s no pain while running, but one other thing which has changed is the way endorphins release after intense exercise and the effect it has mentally. Pre op I’d feel elated after a hard 5K run, with a real sense of ‘letting go’, but now, with the same level of effort (and with fitness levels much better than before the op) I feel very self-conscious. Keen to tell the surgeon who carried out the embolization that the procedure carries with it quite a few psychological consequences!

  151. Not being able to day dream about a book? If you are able to run w/o pain I would think long and hard before getting any type of [coil removal] operation. As humans we tend to take things for granted. I know I did. Like some examples are: being able to sleep more than 2 hours without waking up in pain . Being able to run or even walk. To not have anxiety and panic attacks when the pain just doesn’t go away. Working full time and being in regular conversations. I am not trying to be critical but please do not get surgery done because you think the coils have made you unable to daydream when reading a book. That could be the result of so many different possibilities. If you are not in pain I would highly advise you to avoid surgery. Trust me any surgery has risks and I’ve seen so many people that have chronic pains after surgeries that the doctors cannot explain and they are miserable.

  152. sorry george i’m going to have to support JH on this one.

    obviously any surgery carries serious risks, including a coil removal operation…. even more so because it is not a typical run of the mill operation and every person has coils in different places so one operation won’t be equivalent to anyone else’s operation. so, yes, the risks must be carefully considered.

    that said, i lived eight years with my coils: 2-3 years with acute pain, but 8 full years with the psychological symptoms that JH has described. and i found them terrifying. and yes physical therapy did me serious good, and allowed me to get back into exercising and it’s obviously a first option before removal surgery. But for me it wasn’t enough, and the elation and ecstatic feelings of satisfaction and pleasure were very difficult to attain with the coils in place. i just didn’t feel quite myself until the damn things were out of my body.

    the question: how do i feel psychologically now, seven months after removing the coils ? much better. More stable. More alive. I feel more pleasure, more able to synchronize with my surroundings. Before I felt the presence of a foreign body inside me, now I feel totally me. It’s not perfect, I can’t say that I’m back to where I was pre-embolization, 8 years ago. But it’s also really hard to compare because I’m 36 now and not 28…. And entering the thirties is a huge psychological transition in a man’s life regardless. I’ve also experienced many unrelated personal transitions as well over the last 8 years. but no doubt psychologically I feel indescribably more whole compared to 8 months ago when the coils were still inside me.

  153. jh, send the Nuffield woking hospital’s surgeon name when you have it
    best
    ave

  154. Ive read two ladies on here asking questions as well. I know this is a guy site but can it be expanded to include women. I have had an ovarian vein coil in now for about 4 years. I wasn’t great before that but since then I started having these strange attacks( that what I called them) they would happen while asleep, a sudden nausea and full on dizziness with extreme rush of what I can only describe as electric shock like sensations down my arms and legs. Some ER trips later and no help. Would put me in bed a couple days just feeling sick. They were intermittent. I was blaming antidepressants at the time and I know they def have a slew of prob after being on for a long time so I started a plan to come off. Long story short the acute attacks stopped after getting off SNRI but I had to go on diff AD because of withdrawal syndrome. And the same feelings of those attacks are now constant. 24/7 rather than an acute attack. If that makes sense. I’m spiralling down health wise. Seen every specialist, gp, pysch docs, functional med docs, naturopaths.
    I tried to think back when all this started and the only thing I can reference as a change was the insertion of the coil. Its very long starting from the kidney down into groin.
    Horrible thing is it did nothing to stop pelvic pain. That turned out to be womb. That pain went away after hysterectomy. So now I’ve got this coil inside me and have wondered for a long time can I be allergic to platinum. Ive googled a couple times. This is the first time I’ve found someone talking about this issue.
    I live in Australia and have no idea if this can be removed. I will google the Melissa test now that I’ve seen it on here. Anyway just thought I’d throw my story in the mix. And like I said us women are suffering too, obviously. Great you’ve started this convo.

  155. No need to apologize admin. I am thankful for this site and if I would have read this site before the operation I would not have gotten the operation done. But for me at this point in my life having two small kiddos at home and the pain keeps decreasing over time and I am able to exercise again, the risk of a surgery at this point for me is out of the question. Will I get the removal operation done at some point in the future? Possibly but only time will tell. I do not seem to have the psychological effects like you guys do. George

  156. thanks for your message.
    just to put things in perspective, i probably wouldn’t have created this website if i hadn’t had the psychological/energy effects. the actual physical pain died down after a couple years, though flare-ups were persistant depending on excercise.
    best
    ave

  157. Hey All,
    I had this vericocele embolization done upon receiving the same information that many of you got: that there was little to no risk and I had “nothing to lose”. My varicocele wasn’t large, but because of a post ejaculatory dull aching/pain issue in my testicles/penis upon erection within an 8 hour (approx) recovery period with no other answers, I decided to go the route of the embolization, since vericocele can apparently cause that kind of pain that is then relieved by laying down (which was the case for me). However, within 5 days after surgery, I started having massive pain that built up over a day. Went to the hospital and nothing was “wrong”. It got better and just had a somewhat sensitive small bump on my abdomen. Months later however, I started having much more massive flare-ups with pain, and now I’m in constant pain with “pulsing” in my left abdomen where the coils are, the lower back, and even the testicle on that left side. Occasionally I also get pain on the right side, although not nearly as often. There’s always that sensation of “something wrong/foreign body” and this has caused my anxiety to be always spiking as well. Because of a complicated medical history, I always have had tight muscles, which is probably a part of my pain issue. It also feels like nerve pain too with “tickling” sensations though, that are different from the pulsing kind of pain. For some reason I can’t find my paperwork from 2 years ago in May 2015 when I had the embolization done so I can’t tell you how many coils I got and where. I know they were not all in the same vein however. The doctors didn’t want to deal with it in most cases and many basically told me one version or another of “live with it” but the pain has gotten worse and my health has in general. I’m wondering if anyone has had any luck with surgery to remove (i see some people have, just wanting more detail I guess) and or/legal battles? And the stomach issue that has been brought up is interesting to me. I’ve developed a stomach problem in recent months where I get some very intense cramping/nausea that seems to only be relieved by avoiding certain foods. I have a history of stomach issues, but nothing this odd/bad that also doesn’t have a clear diagnosis (I’ve seen GI docs that basically just blanket term it with “irritable bowel”). I’m curious as to how coils might be related. I’m just not able to deal with this pain anymore and am already dealing with Chronic Lyme Disease amongst other things. I feel like I could write an essay of notes about this, so if anyone wants clarification of what my experience is, I’m happy to add. Also I found a urologist willing to do the surgery after he was shown some stuff indicating it as a possibility, but he also gave me the same warnings others had received as to possibly losing a testicle and many other problems including the possibility of just dying outright from complications. He’s never done the procedure before, but is located in Oregon in the US. Thanks for starting this thread, although like so many others I wish I had researched instead of trusting doctors with the thinking that they were going to be doing their job of actually acting in my self-interest. Best wishes to all.
    Also, to the admin: the psychological impacts are really bad for me as well, especially as someone already heavily impacted by other health conditions including depression and anxiety disorders. I’m glad to see that you’ve made progress though overall.
    Another question: have you had any issues with scar tissue? I guess they can’t know what’s going on until they open you up in terms of adhesions/scar tissue. I guess scar tissue can’t be “healed” though? I don’t know, still trying to get my bearings on all this.

  158. I live in south west england and have also been experiencing alot of post op symptoms. They have been going on for about 3 years now.

  159. addison,
    sorry to hear about all that. a simple xray should be able to locate the coils. many of your symptoms may not go away after coil removal… but i suspect the digestive ones may.
    try stephen buhner’s protocol for lyme disease, if you haven’t already. it may help
    best
    ave

  160. 1) I’m looking for a doctor in the states, preferably pretty close to st Louis or Tulsa. Does anyone know who would do this?

    2) I just had negative metal allergy patch testing, and am waiting for results from the MELISA test. How do I get someone to remove the coil if I’m not testing positive for the allergy?
    After some research we are being told that the coil is actually 92% platinum and 8% tungston with nylon fibers. Anyone else have this one?? Any help or feedback would be so appreciated. Going on many years of feeling like crap and now 6 weeks out of work. Diagnosed with CF right after the implant but then got back to about 100% for a few years. now im in a wheelchair, constantly sucking wind,spleen thats 4x the size it should be. But I always feel better the first 10 minutes or so after
    I wake up, even if from a quick nap.

    Symptoms:
    Shortness of breath
    Extreme Fatigue
    Near syncope when standing
    Enlarged spleen (4x normal size)
    High red blood cell count
    High hematocrit (18)

    Doctors consulted:
    Infectious disease
    Allergist/Asthma
    Cardiologist x3
    Pulmonologistx2
    Neurologistx3

    Thank you!!!

  161. Hello, I have not posted since the end of March. I am going to a new urologist who is also a surgeon and the removal of the coils is part of our conversation. He has said removal is an option but surgery should always be the last option. Following his orders, I just got CT scan results back of my abdomen/pelvis that were unremarkable, meaning nothing abnormal, and coils were where they were supposed to be (anterior of the psoas). This is a good thing to me, it means there is no other reason that I am feeling the pain and pressure. I am also going through physical therapy per his recommendation (myofascial release of the pelvic floor) which has addressed the pain I feel more than any other physical therapy but I do not know if it is helping yet, this week I have been in more pain than I have been in for a while. I do not want to rush into surgery but many times every day, every time I am hit with a twinge of pain in my inguinal area or feel pressure on my left side I want them out now. I will share the location and name of the urologist if we see this all the way through to the removal of my coils and he agrees for me to share his name on this website. Again, I appreciate this website and the fact I am not alone.

  162. I had the coils inserted 3 years ago and have had nothing but problems since. I’ve had full workups by a team of doctors and I’ve been told time and time again “there’s nothing wrong.” What else could explain the constant ache in my abdomen and testicles? Or the significant point tenderness through my lower abdomen and groin area? Or the constant inflammation and lymphadonopathy throughout the body? Thanks to this site, I’ve FINALLY found some doctors who are willing to listen to me…in fact, one of then actually referred me here. I’d like to know who has had the removal surgery and what, if any, symptom relief did you find?

  163. Oh yeah, I forgot a few….

    Persistent nausea
    Weight loss
    Feeling like I’ve been kicked in the nuts all day
    Bowel issues
    Digestive issues
    Acute bouts of crippling abdominal pain
    Persistent throbbing/aching abdominal pain
    Fatigue

    I’m sure I’ll think of others…

  164. thanks for sharing and glad to hear some doctors are catching on.
    for me what has gotten considerably better :
    bowel issues
    acute and throbbing pain
    pain associated with exercise (including sex)
    fatigue
    emotional energy connectedness / consciousness (feeling in sync with beauty)
    (amongst others undoubtedly)

  165. Hi Dan, reading your symptoms was like it was written by me. Every one you have written is the same for me and more. I have the same issues with bowel. The bowel pain is some time crippling but I have that constant pressure that it feels like someone is sitting on me. I too have been told there was nothing wrong till last year when I tested positive for bowel disease. But I have been for all the tests after this, barium meal, scans, and cameras in every hole they could put it in, but found nothing. It has been 4 years now and I thought it would get better as they told me it would do, but nothing. It does give me hope now that I found this site and know I am not alone. A big thank you to the auther of this site.
    Just for anyone who want to know. I went for corticosteroid injections on both sides nexts to the coils a month ago. It has helped a bit with the pain but not taken it away. I still have swelling on the left side and was wondering if any one ells still have swelling.
    Finally I read last week that there is known problems with metal implants. I just wish we could all fine someone that can stand up for us and make our cases heard to the medical profession. A class action lawsuit would suit me for the cost to get these things out even if I have to travel to the other side of the world.

  166. I Iive in the U.K, near Southampton.
    I had a left sided testicular varicocele embolization in feb 14, but it has, i feel, been the worst il-informed decision i have ever made. Like most, i was made to feel that it was a risk-free procedure and that there were few side effects, however the symptoms i am experiencing are numerous and are not symptoms, consistent with post varicocele embolization.
    .

    Pre op- I had left sided testicular pain, it was worst, when playing sport or after walking long distances. It was very painful and the testicle would often sit in an unusual lie after such activities. Test pain had been plaguing me for as far as i can remember (prob late teens, now 32 years old). I had several Ultrasounds, that came back inconclusive, except for one where i was told there was a small varicocele and when i was examined by a urologist, i was told that i had a numerous veins but that it was sub-clinical varicocele. I elected to have a angiogram/venogram, as i was told there would be little risk and that if they could see a proper varicocele they would block the vein but if not they could come back out again without any harm.

    The IR, following venogram, said that he could not identify varicocele, but did see dilation at top end of the testicular vein and he dropped x2 nester coils into this part of the vein. Towards the latter stages of the procedure, he had great difficulty with catheter removal. He effectively ripped the catheter out. He had such difficulty removing the catheter and an operating theatre assistance came over to help, both pulling on it together very forcefully, it eventually was removed. I have since seen a vascular surgeon who has said that the difficulty was almost certainly due to test vein spasm, but I doubt this as the IR did comment at the time, during catheter entry, of the vein spasming. The catheter later stages of removal seemed more like the IR had made a mistake, and it had got lodged or stuck and needed removal urgently
    Post op symptoms- post op, my symptoms started off with a pain in the right side of my abdomen. It was like a stitch, it was very difficult to go for a run it was very restricting. It felt like blood flow in this region was haywire, flowing up and down. It seemed worse when sat down it was incredibly uncomfortable. I would sometimes get a shooting cramp pain down my right leg. On the left side, where the coils were, I could just feel the presence of the coil, a bit of tightness, not much else. Gradually throughout 2015 the pain began to migrate over to the left side of my abdomen, again the familiar tightness, cramp like sensations migrated to this side. Felt Like the surrounding tissue was flooded with blood, like it wasn’t draining away from that area. Throughout 2015, there was a migration upward on the left side of my body of this pain, it felt as if there was an upward pressure, like blood was trying to force its way upwards. Each time it got higher up, I would feel a racing, fluttering feeling, when lieing on my front in bed, it was almost audible the sound of racing of blood upwards. The symptoms have now reached my chest, when they reached there, I then began to get headaches and the feeling of blood trickling into the left side of my head. I developed a fogginess/cloudiness in my head. For well over a year now, I have had debilitating pulsating headaches, the worst possible headaches you can imagine and left sided chest pain. The chest pain has now begun to radiate to the right side of my chest and I get a tightness in my chest. I get pain radiating up to my left shoulder and sometimes up the left side of my neck.

    Symptoms at present
    -Fullness in my chest
    -Tight chest
    -Headaches
    -Pain in the shoulder (front and scapula region) and under armpit
    -Dizziness
    -Low energy
    -Weakness in my legs, like my legs have poor circulation
    -Recently bloated stomach that won’t shift and it isn’t linked to diet

    Consultants seen

    IR x2 (same consultant, not very helpful both times!!!!)
    Neurologist
    Cardiologist
    Vascular surgeon
    Urologist

    Seen them all in this order.

    All of them apart from the urologist have been very dismissive either of the coils causing these symptoms or a complication arising catheter removal.

    Neil Barber who I actually went to see thanks to this page didn’t actually say that the coils are the cause, he left it pretty open. He also states that he has never removed coils, due to pain, only removing them if they have failed to deliver relief of a varicocele, either by moving or by sticking out of the vein. From looking at this page it is very apparent that they do cause pain when they react with peoples bodies, when they lodge in strange places and people have eventually gotten relief when removed.

    For me I am happy that I have seen Dr Barber, who has expressed a willingness to remove them. I am going to give it a lot of serious consideration, however I feel it is a punt, but to me, these symptoms have gotten so serious that, I feel I have no other choice but to remove them and see what happens. But I will have to be very prepared for the physcological consequences if their removal does not clear all or any of my symptoms..

    I still feel that it is still possible that there was some form of complication or accident during catheter removal and that is the main cause of these symptoms. However a CT venogram, showed no remarkable findings, like a previous post, normal vascularity throughout and that the testicular vein is collapsed. However, CT does not show vein function etc etc the IR also did note, that if I had presented sooner, they may have found some pathology, ie in first few months of the procedure. The CT venogram was in OCT 16, OP was in FEB 14.

    I’m sort of 60/40 in favour that there was some type of complication with catheter removal.

    I tried to keep this short and I apologise for it being longwinded. I might have left some info out, please feel free to ask any questions. I greatly welcome any responses.

  167. rich
    your symptoms sound terrible, sorry to hear about all this.
    seems like some serious nervous system issues. wouldn’t surprise me if it was linked to the coils but it is strange—above all, how far the pain is radiating from the coils.
    where was the catheter located?
    -ave
    ps : i suffered from a “foot” problem (so called “plantar fasciitis”) for four years, unable to play sports, seeing all kinds of “specialists”… until one day someone said–do yoga iyengar. i couldn’t even jump on my feet at the time. six months later i was running. in fact, the problem was not in my feet at all, it was in the alignment of my hips and crossing of nerves there. yoga realigned me opened me up. the point: pain can be transferred long distances in the body. see claire davies’ Trigger point manual. so it is not unheard of for me that your surgeries are leading to transferred pain problems. the question is whether or not it’s the coils or the catheter, or smtg else.

  168. thanks for the quick reply, the catheter would only pass down as far as the SI joint.2 nester coils were placed at this site.

    Dr barber (consultant urological surgeon) stated that I.R’s he works with wouldn’t have even embolised so high up the test vein and that it was unusual to have embolized here.

  169. my symptoms feel more vascular in nature,blood flow related like pressure buildup in my blood vessels trying to release here,there and everywhere.

  170. sorry rich i have no idea what you mean. please state catheter location in layman’s terms. ie where was the catheter inserted into your body/ie the place it was “ripped” out. was it a uretic catheter ?

  171. The catheter went in via the common femoral vein on my right leg,up then into the inferior vena cava and then into the left renal vein and then left testicular vein.

  172. Hello,
    I give some news.
    My coils were removed (from both sides) on April 20th.
    Unfortunately, I don’t feel better today.
    My symptoms are still here :
    Digestive issues, bowels issues, sexual dysfunction, lower back pain, blockage in my body, ….
    I think another disease may be involved.
    I feel same symptoms as Rich says.

    Michael

  173. I am having the coils removed August 9th. I hope the removal of the coils has a positive effect on my health and adds to a feeling of me being whole. I still feel everyday like my body is fighting itself. While some of the symptoms have got much better in the past year, I still deal with pain that radiates from my inguinal area, spreads to my iliacas and elsewhere, causes a dull side stitch on my left side, tightens tissues on the edge of my ribs on my left side all the way to my sternum, gives me a pulled muscle sensation from my inguinal area up to the middle of my pectoral, creates pressure on my left side that feels like someone is sitting on my left side or the feeling of pressure being corked up. I also experience some weird leg, neck, and back pain, but on a minimal basis, although the leg pain freaks me out because I had a DVT in February. Occasionally, I have more acute pain when I bend over or stand slightly bent looking at or working on something. Driving in a car is fine sometimes and then sometimes the waist band of my pants or belt makes my area around where I think the coils are located ache sharply (I still have not seen images of where the coils are located).

    The surgeon that is removing my coils has talked to Dr. Finelli and has decided to remove only the coils from both locations in my body laparoscopically. In our original consultation he was contemplating removing some of the vein housing the coils as well.

    If any of you are people of prayer and read this post, I would appreciate your prayers. Please pray that the removal of the coils goes well and this surgery would help me to return to closer to how I felt before I had the embolization procedure (normal). If everything goes as planned, I will have had the coils in my body five hundred and seventy-nine days. Knowing what I know now, that is five hundred and seventy-nine days too many.

    I feel like this website has given my voice more strength because of all of you that have shared your story. Without this site, I do not know if I would be having my coils removed in a week? Thanks.

  174. Good luck to you scott, i hope you the best.
    the surgery is not without risks but for many of us the benefits have been paramount.
    keep us posted

    i would add, as i have mentioned in my last post to michael, that it is worth mentioning i think that the removal of the coils is one thing and the removal of tissue adhesion and scar tissue is a secondary issue. tissue adhesions and scar tissue in the area of the embolization, in my opinion, could be linked to symptoms of nerves and digestive issues. They should try to be treated by the surgeon during the removal process, if possible without too much risk. this is, of course, non professional advice, your surgeon has the final word.

    best

  175. michael, thanks for sharing.
    it is worth mentioning i think that the removal of the coils is one thing and the removal of tissue adhesion and scar tissue is a secondary issue. i think that the treatment of the latter is just as important as the first while the embolization removal is taking place. your continuing symptoms could be due to this, or it could be another disease, as we have discussed personally. hard to say. for what it’s worth

  176. Hello !
    This is the story of my situation. I’ll try to keep this brief because I am French and I don’t speak perfect English.
    I am 35 years old. No medical history except the varicocele.
    After 7 months of left testicular pain and a grade 3 varicocele I decide the embolization with interventional radiology because this solution was presented as the most reliable, the least intrusive and without significant complications.
    The embolization of the left spermatic vein was realized under total sedation by the insertion of 6 coils. During this intervention the radiologist also took the initiative of embolize the right spermatic vein by the insertion of 2 coils while the varicocele on this side was only of grade 1 and painless.
    After 2 months the left testicular pains stopped but many of the other pains settled down and amplified by the physical effort, the seated or lying position.
    Today 6 months after the intervention the simple movements of the everyday life cause me many pains: inguinal pains, lumbar and back pains, abdominal pains …
    My life is strongly affected on all the plans and I regret bitterly this intervention. I did not find solution of relief and I envisage a surgical operation of remove of coils.
    I thank the creator of this site because I did not find equivalent in France and it allows to share its experiences to move forward and feel less alone.

  177. I had the vericocele embolization procedure done about 4 years ago in Denver, Colorado.. I remember researching this procedure pretty intently before I got it and I recall specifically the only side effect that I was worried about was the coils migrating , the doctor at the time ASSURED me this was not possible and or very unlikely due to the fact that when the coils are inserted, that they create scar tissue and just won’t be able to move…. It seems this is very untrue…. I have tried contacting a few attorneys to see what they would say about a potential lawsuit if this were the case and most did not seem interested or wanted me to contact them later when I had “DAMAGES”… I have a funny feeling this is only the beginning of a long struggle and remember the radiologist at the time telling me after I asked him how many coils he inserted he said 6…..
    Michael U.

  178. I had the coils removed Wednesday, August 9th. The most important thing I will say first, “I do not feel like my body is fighting itself anymore. I feel like I am more whole.” The mental aspect of the coils, when they were inside my body, is very hard to put into words, but all of you that have felt weird with them in know it is a battle. I feel like that battle, I do not have to fight now, because the coils are now gone. Physically, the inside edges of my ribs on my left from my flank to my sternum feel normal for the first time in a long time, not inflamed or aggravated. Some of my other physical symptoms I am going to have to give more time to heal.

    I was in the operating room for nearly four hours, from 8:30am until 12:17pm, under general anesthesia. The surgeon told my wife that things went well. He removed the coils from one of my sites but end up removing a section of vein that housed the coils at the other site. I will say recovery was and is a little rougher than I was hoping, but after 80 plus hours I am starting to feel much better. I did not experience much shoulder pain with the laparoscopic surgery as some have shared but had plenty of discomfort in my intestinal/abdomen area. I did try to make a point of walking as soon I as could after my first failed attempt in the recovery unit (The pain going from a laying down position to upright was nauseating and I couldn’t, didn’t stay standing). I was discharged around 1:00pm Thursday. I have weaned myself off of all narcotics already, trying to only take 400mg of ibuprofen when I need too which has been about every 4-6 hours. Getting off the hydrocodone, I believe, helped my bowels get moving, I am glad because that has helped relieve a lot of discomfort as well.

    My first impression of how I am feeling is a good one. I was a little more hesitant to have the surgery after Michael shared removal didn’t work for him. I also know that any surgery has risks. I am glad that I saw it through. I will hope to share more after my follow up appointment with the surgeon Tuesday. I hope he agrees to let me share his name because I feel he could help others.

  179. It’s been two months since I had my coils removed at Erasmus MC in Rotterdam. In my case it was complicated because one of the coils was placed into the kidney vein and I was at risk of thrombosis or coil migration. I’ve been lucky that this did not happen and even luckier that the removal procedure was a succes and did not cause major complications. The urologists temporarily closed off the renal vein during laparascopic surgery in order to pull out the coil and then removed the rest of the left testicular vein and with it the other coils. Indeed it was a very straightfoward procedure, even in my case. There was also a vascular surgeon at standby in case things did go wrong.

    The consequences of the removal of the vein are not only a disappearance of the horrible symtoms the coils were causing but also a healing of the varicocele. Apparantly the embolized vein was still causing a varicocele and the procedure couldn’t have been more ineffective. Contrary to the terrible job the radiologist had done in the hospital in my hometown these doctors actually knew what they were doing. Despite the possible risks the removal procedure could have caused I felt I had nothing to lose. The symptoms I had after the embolization were that bad and corresponded with those described by others.

    However it’s wasn’t all smooth after the procedure. The surgery gas that rises up inside the chest cavity and shoulders caused a lot of pain and cramps for up to 4 days and then lingered on for about a week. It made breathing in a challenge. Moving around initally made the pain worse but was effective in the long run. Still this was small potatoes compared to the symptoms caused by the coils. There was also some kind of inflammation around the left testicle along with fluid buildup and a significantly enlarged, hardened and painful left spermatic cord that arose a couple of days after the procedure. I was told that this had to do with bloodflow that needs time to stabilize through other veins. Most of the pain and discomfort went away within a week and there’s been notable progress since. The vein can still get a little swollen notably when I lay on my back while it returns to normal when I stand and move around. But most importantly, there was no more varicocele visible on ultrasound and I have no more typical symtoms indicative of a varicocele.

    I consider myself extremely fortunate how things ultimately played out and that I can put that nightmare behind me. I hope this will be the case for others too.

  180. My surgeon’s name that removed my coils is Dr. Robert Stein from the Cleveland Clinic in Ohio. Dr. Edmund Sabanegh was the original urologist at the Cleveland Clinic that I saw, and he referred me to Dr. Stein after my CT can came back normal and I underwent 6 weeks of Physical Therapy. I feel like both doctors listened to me and cared when the only thing I had was my experience with pain for the last year and a half and the MELISA Lymphocyte Transformation Test that I had completed after I shipped overnight my blood to Germany, stating I was strongly positive towards Tungsten.

    Here is the Operative Report from Dr. Stein Regarding my procedure August 9th.
    It is a little lengthy but if someone’s coil placement is similar to mine these details might help another surgeon.

    “Operative Indications: This is a 37 year old male with a history of pain and allergic intolerance to tungsten after previous left varicocele coil embolization surgery who after discussing the risks, benefits, and alternatives of the procedure has elected to pursue management of their condition via removal.

    Procedure details: The patient was correctly identified and a surgical huddle was performed with the patient and all involved staff. A weight appropriate dose of prophylactic antibiotics was administered intravenously prior to the procedure and sequential compression devices were applied to the lower extremities and activated prior to induction of anesthesia. A timeout procedure was performed and confirmed and the patient was induced under general anesthesia. The patient was moved into the right lateral decubitus position and pressure points were padded and patient was prepped and draped. Abdominal access was obtained via Veress needle though a 12mm incision slightly inferior to the usual point tho-thirds of the distance from the umbilicus to the left anterior-superior iliac spine. Carbon Dioxide insufflation was initiated. A 12mm port was place at this point. Inspection revealed no injury to the intra-abdominal contents. Under direct vision, a 5mm Left hand port was paced inferior to the costal margin at the lateral border of the rectus muscle. Finally, a central 12mm camera port was placed in between these two points in a straight line configuration.

    The left descending colon was reflected medially using scissors, revealing Gerota’s Fascia and the lower pole of the kidney. The gonadal vein and ureter were easily identified. The gonadal vein was mobilized and dissected cranially and caudally. Two areas of scarring were noted with visible metal coils underneath, consistent with pre-operative imaging. These areas were confirmed to be the areas containing the coils using the laparoscopic ultrasound probe. After confirmation, the gonadal vein above and below the coiled areas was clipped with hem-o-lock clips and the vein was divided. The two sections of the vein wee removed and sent to pathology. Hemostasis was then assured in the operative bed. Fluroscopy was performed at the end of the case again confirming no residual metal coils in the operative area. Final inspection of operative bed confirmed good hemostasis. Both 12mm ports were removed and the sites were closed with the Carter-Thomasson device and 0-polysorb ties. The 5mm port was removed under direct vision.

    All incisions were irrigated with fresh solution. Gloves and instruments were changed. Thereafter, skin was reapproximated with 4-0 polysorb in a subcuticular fashion at all surgical incisions. Surgical skin adhesive was applied. Local anesthetic was injected at all incisions. At the end of the procedure the sponge and needle count were correct. The patient tolerated the procedure well, emerged from anesthesia without incident, and was transferred to PACU in stable condition.”

    In my conversation today with doctor Stein, I discussed my thoughts about my how the coils cause chaos. Is it truly a metal allergy or is it a blockage or confusion of some type of pathway (meridian) or nerves. He said he would lean towards metal allergy being the cause of people’s problems with the coils. I am still adjusting to not having coils in my body and recovering from surgery, but I do feel like I have been given a new start. I did get an annoying blot clot in my left arm up a vein where they had and IV for more than 30 hours. It is superficial and I am taking aspiring and monitoring it. No other complications other than that so far.

  181. I am sorry to keep posting, but it is infuriating that there is ANY tungsten used in ANY medical implants

    “Tungsten is known to be capable of biological interaction and disruption of biochemical pathways and therefore the human health impact must be considered.”

    https://academic.oup.com/toxsci/article/1647906/Tungsten

    Maybe this explains why people that have coils feel like there is some kind of communication break down in their body or a blockage in the meridians or flow.

  182. Thanks for sharing the updates Scott.
    I saw one of the urologists from the team that carried out my embolization surgery last month and he basically said I wasn’t allergic to the coils and my anxieties were not down to physical reasons.

    I also had an ultrasound which picked up a very small inguinal hernia in the exact spot where the coils were inserted. Did the coils cause this or was this a weakness already present? Who knows? The urologist agreed that I should have an X ray to see if there was any coil migration, so waiting for that.

    I’ve gone back to doing hot yoga and most of the poses are fine and pain free but there’s slight discomfort/stiffness on the backbends/locust position which I’m assuming is the hernia, but there’s feeling of ‘buzziness’ the following day on the left flank that makes me still wonder if the coils are still inflaming the area. I’ve noticed that any exercise I do which involves twists or bends sets off anxiety. Not desperately keen on having hernia surgery with mesh implants, I have to say, but I know that I’m luckier than most in terms of the symptoms post embolization.

  183. Congratulations Scott on your brave endevour. I wish you continued improvement.
    Do you know if your original embolization just used coils or was the “sandwich” method used in which a coil is placed at the bottom and the top of the gonadal vein and a liquid sclerosant agent is injected to destroy the vein between them?

  184. Sorry I took so long to reply. My coil I received in 2003 as you know failed! And the veins built around it. I was offered another coil but I declined as the previous one didnt work.

    I always on and off have a numbness down there on my left side (where the coil is).

    I’ve hours ago had the snip and this isn’t painful but the coil area is the same dull bum pain. Is there anyway I can get the coil removed? I mean it’s not doing anything. It’s just sitting there.

    Thank you for all the advise previous

    BTW I’m from Portsmouth UK

  185. Question. Both preceding and proceeding the removal of the coils, how is blood redirected through the veins? It is my impression that the coils are there as a “blockage” or a “plug” to redirect the blood flow. Once they are removed how is blood flow redirected?

    Thank you,

  186. Maybe someone else can comment, but this is how i see it:
    theoretically, the point of the embolization, to block “bad” blood flow, back towards the testicle. I quote Mike’s useful dec 18 post “the actual purpose of the embolization is to block the vein not the artery. The artery is what supplies blood flow to the testicle and the vein pumps deoxiginated blood away from the testicle back to the heart. The embolization is done because a faulty valve in the vein is causing blood to drain back down to the testicle causing pooling of blood and excess heat.
    so no more blood flow is taking place in the vein after the embolization (though i suspect that blood may find other ways to reroute)..
    at any rate, it seems that removing the embolized vein changes nothing, according to my surgeon, because the vein is already unused, “dead”. it’s not like cutting a water pipe, and having water squirt everywhere, it’s more like cutting a pipe full of dried mud.
    maybe someone else has something to add

  187. I appreciate the response. My understanding is in alignment with yours with the fact that the purpose of the procedure is to eliminate the vein that has the faulty valve (to stop the back-flow of blood causing the varicocele). However, I was told by my surgeon who preformed the embolization procedure that the the blood will be re-routed using other veins.

    The only difference I have with what is posted is the veins carry oxygenated blood to the lungs, which then go to the heart to be pumped to the rest of the body.

    The imagery that I always had (which could be wrong) is that by removing the faulty vein (the river source) the blood will find other avenues to the lungs (ie. through streams/creeks).

    I always envisioned the procedure to have two main coils acting as a plug between the faulty vein. That faulty vein will eventually atriophy due to no new blood source going to it. However, what I am confused from is by removing the coils, won’t blood leak out or cause internal bleeding? Or once the coils are removed will they need to plug it with something else?

    Perhaps someone who completed the coil removal surgery can comment.

    My main concern is from heavy metal toxins in the blood stream, as that cannot be good for general health. If removing the coils can prevent this, and the blood is already being redirected elsewhere, then what is the actual point of having the coil in the system anymore?

  188. John, I was never told if any liquid sclerosant agent was used in between the two coils by the interventional radiologist who put them in or the surgeon that took them out, so I would assume it was not. I have the report from the procedure of the coil implant as well and I do not recall that in the notes but some doctors do not take thorough notes.

    Brandon, The surgeon who removed the coils called my procedure a varicocelectomy with coil removal. He put a hem-o-lok clip above and below the coils before he removed them even though it was already a “pipe full of dried mud.” If you google hem-o-lok you will see what they are and do.

    Recovery update: Besides a blood clot in my arm from the IV and infection in my middle and lower incision, I am doing well. The coil removal has not been a TOTAL night and day or on and off effect of relief from all of my symptoms that I experienced when the coils were in, but some symptoms ARE GONE and HAVE NOT returned. My inflamed ribs and pressure or corked up feeling on my left side have went away and I have not experienced those feeling since coil removal. The dull radiating pain from the coils has been gone as well as a fairly constant tight illiacus muscle. I have had quick flashes of some of the anxiety and internal pain about once or twice a week since removal, it is short lived about a half hour or fifteen minutes and feels different and not as intense as when the coils were in. I hope these eventually go away altogether as my body heals. My lowest incision point is right on my pant waist band and it gets sore and burns similar to the way my lower coil did but different, more superficial burn and not deep dull ache. I am very glad that I had my coils removed and I am hoping to feel better and better everyday.

  189. Thanks to this forum here I cancelled my varicocele embolization the day before it was scheduled. I spent the last few months learning more about this procedure. Until recently coils were used to block the long veins that are causing the varicoceles. The coils caused the veins to become irritated and inflamed which then lead to blood clot formation in the veins which then lead to their collapse and eventually being absorbed by the body. So after a while an xray shows just the coils and no vein. This takes the pressure off the testicles and resolves the varicoceles. Normal blood flow is restored through other veins that exist.
    The problem with coils, besides their awful side effects, is that smaller parallel veins also exist and these are still open so the varicocele may still return later on.
    So now most places use a detergent called a sclerosant which chemically destroys the walls of the veins. It happens really fast – like in 10 minutes. the problem is that it is a foam so it can enter the scrotum and sclerotize ( kill ) important veins in the scrotum. So IRs now “drop” a few coils in to the bottom of the defective long veins to seal the bottom before they inject the sclerosant. This foam has an important advantage because it flows into all the collaterals and seals up all the veins that could be causing high pressure on the scrotum. These veins just dissolve away after a awhile. Then the IR also puts a “few” coils at the top of the veins to make sure no sclerosant spills out into the kidneys and lungs.
    This is the “sandwich” method and is the standard of practice now in the N. America. But Europe has gotten away entirely from coils.
    There they just use hand pressure at the base of the large veins above the scrotum while they inject the sclerosant and hold it until all the offending veins are dead. They have the patient perform the Valsalva maneuver which is just bearing down like you are constipated and that keeps the foam from flowing up and out. It is an elegant procedure and simple and NO COILS.
    I live in Canada and have travelled to the US and here and no IRs will do this procedure. They all want to do the sandwhich method. But now I found an a great IR in Toronto who has agreed to do my bilateral embolization without any coils following the European methods. He hasn’t done it this way before but is confident he can do it ok and I believe him. I am scheduled for October.
    I thank everyone here so much and wish you all the best from my heart. When the dead veins are removed it is like removing dead varicose veins in the legs. It does not affect blood flow because other veins are already established with the new flow routes.
    Sorry for this long note.

  190. Hey Scott, thanks for the update/reply. Do you think the body will react negatively to the hem-o-lok clip materials?

    Thank you

  191. hi John
    thanks for the details on the sclerosing embolization procedure, was also curious about that
    i would be curious to learn what the side effects are for it. seems like there would be much less… notably if coils are not used (like in europe apparently…. although my coils were placed in france in 2008)

  192. Hi admin – first I just want to thank you from the bottom of my heart for this forum. You are a guardian angel for many of us.
    There are published European studies (by Gandini; Ali; Urbano )involving hundreds of men who have had this procedure w/o any coils. There are no side effects except for some abdominal and back pains for a few days that are treated with Ibuprofen. The pain survey during and after the procedure was around 3/10 with 10 the worst.
    There was a very high success rate ( over 90%) with almost recurrence. Out of the hundreds done only one was reported where the sclerosant got past the inguinal ring where the compression was placed. This caused inflammation (phlebitis) of the scrotum and required antibiotics and pain killers for a week but then resolved ok with no lasting effects.
    From my reading (as an amateur) coils were originally used as just physical blocking (or embolizing agents) in the gonadal veins. So they just disrupted the hydrostatic pressure head from the standing column of stagnant blood and therefore reduced the pressure on the testes to rid the varicocele.
    But later in the 1990s the coils were fitted with little bristles on them to iriitate the vein as well which caused inflammation (phlebitis) which then activated the immune system to cause clotting of the veins (thrombosis) which over a few months lead to fibrosis of the vein which would then sit there dead like scar tissue with coils in place. But even after all this the coils could not close any collaterals so the success rate to fix the varicocele was low ( 60%).
    The liquid embolic agents like STS foam and polidocanol are not really true embolic agents since they don’t physically block the vein at all. When injected they flow into the large gonadal vein and its collaterals and any other small veins and they chemically destroy the walls of the veins which closes them up in a few minutes. So it is really called chemical sclerotherapy and the dead veins are then just absorbed over time.
    There is another liquid embolic agent called glues and these both block the vein physically like a coil and also trigger chemical phlebitis. There are IRs who use this method in the US for other procedures like brain aneurysms but it is very expensive.
    Since I first found your forum (a miracle!) the day before my coil therapy I’v spoken with 14 IRs in the US, Canada and Europe (I live near Toronto). Most were really hostile and angry and said the usual stuff that coils are perfectly safe and there has never been a problem!! But a few were willing to try the procedure w/o coils along the European lines but they were still very angry that I would dare question their training! This IR in Toronto is very different and I am confident he can do it and if it goes well I will ask his permission to post his name here.
    Thanks again admin and all the others here who shared their stories. You have helped many men.

  193. thanks for the kind comments
    but i dont consider myself any different than all of you
    i just created the platform… but it would be nowhere without everyone’s shared stories
    life is a big circle
    you get what you give

  194. … i don’t have time to look into it further, but according to your post and the study, embolization via sclerosing agents seems a much less risky alternative to coil embolization. why hasn’t a study like this come out showing the problems with coil embolization ???

  195. There have been several studies that compare the two methods and discuss some of the problems with coils. For example, the Gandini study mentions, ” Unlike procedures that employ coils, sclerotherapy does NOT involve the insertion of extraneous bodies. Also coils can be associated with early recurrence of varicocele because of endogenous lysis of the clot and later recurrence because of coil erosion”.
    Another study by Favard (2015) comments, ” One disadvantage of coils is that they are not as effective in the presence of collaterals which can lead to varicocele recurrence. Also, coils have been shown to lead to complications such as coil migration which may cause pulmonary embolism and other problems”.
    And still another study by Ali ( 2015) says, ” coils have been shown to lead to severe complications, including migration, corrosion, pneumonia, pulmonary embolism and later varicocele recurrence. ”
    These are all European studies and they cite more references.
    I asked all the IRs I spoke with about the procedure if they had followed up with their patients over time to see if they developed the types of problems discussed in this forum. Only one IR ( the one I am using ) admitted that there were some problems but he tried to downplay it by saying it was “rare”. The other IRs said the types of problems I was referring to were not caused by the coils! And then they got mad at me and glared – everyone save one. But I know the truth having digested all the posts here.
    I think the type of study you refer to would be met with the same resistance you had in trying to start this forum. We all just need to get the information out to as many men as possible and maybe we can gather our own “statistics” and publish our own study in an open access publication.
    Thanks again.

  196. Hi there, still trying to arrange an operatoin and date for removal. Can anyone give me the email address of a surgeon who may be able to book me in. Despite my efforts of contacting surgeons on the list. Noone ever responded. Anyone able to contact a good surgion on my behalf? Many thanks.

  197. Ross email often doesn’t work for these doctors. the best is to call and get an appointment and discuss directly with them. good luck, ave

  198. Ross- Dr. Antonio Finelli at Princess Margaret Hospital in Toronto removes coils. I’ve used him as my urologist in the past. Here is his phone number: 416-946-2851. He has a wonderful office manager named “Delicio”. If you leave her a message with your details she will eventually get back to you as she is very swamped with patients. But she will call back and when you get her on the phone she is very helpful. Their office never answers emails. Good luck. John

  199. Does anyone know if sciatica is related to varicocele embolozation? Since my operation i have barely been able to walk due to pain and the urologist says its not his problem now. What can I do?

  200. all the nerves pass through the waist area. if one of the coils has migrated and is touching a nerve, i believe it can cause referred pain up and down the body.
    side anecdote : in my own case, before i had the embolization, i had feet pain (so called “plantar fascitiis”) for five years that i couldn’t get rid of. i went to all kinds of specialists.. got inserts, etc, nothing helped. i could barely walk without pain. after five years of suffering someone told me “try yoga iyengar for six months”. i did this and after 3 months the pain was gone, after 6 i could run again. i learned that, actually, the problem wasn’t in me feet at all, it was in my hips. yoga opened up all the joints and nerves and got things back in place. then, disaster, i decided to get the embolization. because i didnt have the same flexibility after the embolization (stretching in certain ways caused shooting pains in different directions), some of the blockages that were present before came back (though not to the same extent, and i was able to manage them more or less.) so my suggestion : try deep tissue massage and yoga iyengar to see if that helps

  201. Been reading up on the comments. First, I want to thank everyone for their shared experiences. It’s great that there is such an informed community out here.

    My story: I’m a 21 year old college student with a varicocele on my left testicle. I had Laparoscopic surgery when I was 18 years old. I now look back at this procedure and wish I had never gone to the doctor in the first place. Prior to the procedure I never really felt any pain, or any symptoms of low testosterone, the main reason I had gone in was because my surgeon scared the shit out of me when he told me I could become infertile if I didn’t fix the varicocele. We did a series of sperm tests and I did in fact have below average production, so with fear in my heart, I agreed to go under and the the varicocele “fixed”. Four months after the procedure I went back to the same surgeon and complained about the recurrence of varicoceles I felt on my testicle. I was told not to worry, that this was typical and that they would never cause me any issues in terms of fertility/pain/testosterone production. He basically brushed me aside.

    Fast forward to today, and I now am experiencing testicular pain for the firsts time in my life. The varicocele has definitely grown in size, and it’s really become a mind-sore. I don’t want to go back to this same surgeon, I no longer trust him.

    I want to understand what my options are. The pain I feel is very mild, and seems to come and go depending on the day. I fear that if I ignore this and continue life that the varicocele may become larger and ultimately effect my health (low testosterone, infertility, more pain).

    From what I’ve read in the comments a chemical embolization might be a good option. Are there any large risks with this method? Are there any horror stories of this going wrong? What happens if I have recurrence after utilizing this method? Can you continue to have this procedure if recurrence is a problem?

    My biggest fear is that I go in for another procedure and end up screwing up my nuts even worse. Does anyone have any insight on this?

    Thanks everyone!

  202. Hi i had this procedure done two days ago and nothing feels right. Now regretting it terribly. Incredibly high heat beat, no sleep. Does anyone know of a surgeon that removes these in sydney? I can feel them sitting there, it is so unnatural. Why would this surgery be recommended and sold as an easy and safe fix?

  203. Hi
    i dont know of any sydney surgeons. my suggestion is to get appointments with handful of urological surgeons. maybe one of them will agree to take them out. show them this website. may be risky so close to the insertion date.
    take care, good luck

  204. Coming up to the year anniversary of having the coils put in. My experience has certainly not been as unpleasant as others but nonetheless it’s still had an impact. Still waiting to have an X ray of the coil site as there is still, a year on, inflammation and discomfort in the exact spot where the coils were placed. Any physical exercise which involves twists results in discomfort the following day. I’ve worked extremely hard at improving my physical health and the stats show that I’m fitter and stronger than a year ago, but the ‘foreign body’ sensation still persists – like a cork stopper in a wine bottle, alongside the strange psychological strait jacket of not being able to ‘let go’ and not feeling ‘whole’.Will be trying acupuncture next, there’s definitely issues with overstimulation and warning signs being sent to the brain, subconsciously.

  205. hi guys,

    we have approximatly the same pains with the same surgery.
    I have contacted a lawyer and for my case, she thinks it’s easy to win a lawsuit.
    I m started to consolidate all my documents for her and in two or three weeks, we will start a lawsuit.
    It’s just for the other patients and to make an example for bad radiologist and urologist. Doctors must tell to their patients that this kind of surgery can give pains in some cases.
    After i will ask to an other urologist to remove the coils. Probably Dr attignac or Dr Belley in Paris.

  206. It has been 3 months and two days since I have had my coils removed. I am so glad they were removed. Some days go by now with me not having any odd feelings or what I feel were side effects of the coils in my body. Occasionally, I still get a weird feeling on my left side like some nerves that are not communicating correctly or maybe there is still some leftover tissue that has not healed or became normal yet, I don’t know. The year and a half my coils were in my body were horrible. The coils’ constant radiating presence, their constant mental or nerve alterations, and the inflammation and tightness in my left mid-section were hellish. I was running out of hope with the coils in. I still have a little tightness in my left side occasionally, but I feel like I am improving continually. I am able to run and do physical activity without paying for it the next couple of days with increased inflammation on my left side. I just feel typical soreness from using a body that I have given up on for awhile. Mentally, I am handling personal and professional situations in a way where I feel like I am more in control instead of feeling like I am struggling to maintain control of my responses. I still have some rib issues and I have struggled with with their glitches being caused by my coils or their impairment being related to the fall I had three months after my coils were inserted. The rib issues have got better since the coils have been removed but I still feel out of alignment or like a rib is slipping or something. I am going to try some chiropractic or physical therapy now that my wounds are healed and I am being physically active again.

    I wish I could find a lawyer in the United States that thought there was a case for me. I have shopped my case around and asked my brother-in-law, who is a lawyer to shop my story to some of his lawyer colleagues. I had a half of an hour conversation with an attorney that basically said if everybody on this website that complained about side effects ended up with cancer and it was proven tungsten or other things contributed to that then I might have a case, but to go after Cook Medical or other manufactures would not be cost effective, especially now that I have had them removed (and feeling better) and did not suffer a loss of an appendage or did not lose my job because of the side effects or suffer other severe side effects. I feel like I did suffer a lot, I just fought through it. I just want the medical community to warn people about possible side effects, the fact that the coils are not pure platinum and that tungsten leaches into people’s bodies. That is the thing that burns me up the most is that I had a couple medical professionals tell me all of my symptoms that I felt after the coils were in were in my head or anxiety related.

    Good luck to any legal action against the pushers of the coils and I hope it makes changes in this type of procedure and the products used.

  207. thanks so much for sharing scott
    and good to hear you are feeling better

    all the best of luck, keep us posted

  208. Hello everyone,
    I had the embolization done with the coils for left and right vericocele about 5 years ago.. I started having issues about six months ago, when I started noticing strange lumps in my penis.. I went to a radiologist who confirmed that 2 coils had moved from where they were originally placed to their new position down in my penis..(Originally had six coils implanted) Since then more coils have moved to different locations on the left and right side of my penis.. This is causing me all kinds of problems that I wont go into here… Has anyone ever heard of this??? I live in Denver, Colorado, and not sure what to do, I am looking for a surgeon who will remove these coils without causing further damage…

  209. Hi Michael
    This does not sound like coil migration, this sounds like Peyronie’s Disease. have you looked into that?
    good luck
    a

  210. I would love to chat and share information! I am working on a site for women who have had an Ovarian Vein Embolization which is essentially the same but in females as I am sure you know. I believe and have many doctors written statement that coils should NOT be put in ovarian and gonadal veins except in very rare situations. There are so many of us left in insane pain that need to combine our resources to get the word out. Tomorrow at the Vein Conference there is a session called “Grow your business with large volume coils! It is just more money! 🙁

  211. Hi Admin – thank you very much for setting up such an open forum. It’s refreshing to see people publicly discussing health matters that may benefit others.

    I unfotunately had an embolisation done a couple of months ago. Similar to the stories here, it was completely undersold to me. ‘One or two tiny coils to regulate bloodflow, it’s done all the time and the only side effect could be some bruising at the entry point’. 2 hours in the chair and ten coils stretching across 30cm of my gonadal vein later the impact couldn’t be more of a contrast.

    Similar to the stories on here I’ve been experiencing a deep dull ache radiating from the coils, back ache, irritable bowel and a kind of reflux / heart burn in my lower left chest. I was fortunate enough to experience no health complications prior to the procedure and had not experienced any of these symptons previously. I am certain these are a direct result of the procedure.

    One question i do have for the group was if anyone had experienced reduced circulation post the embolisation? I have noticed my arms and legs go ‘dead’ quite quickly if pressure is put on them. I’ve read the collateral pathways may take time to establish themselves so this may be the case here though i would be interested to hear other’s experiences.

    I would also love to hear updates from those who have had the coils removed. My body has been telling my mind to ‘undo what you’ve done to me’ since having them put in. Did the vein open back up or had it completely died off? Anyone getting close to pre-embolisation levels or are those days now gone?

    Thanks again

  212. Hi NJ
    I’ve left an update on my coil recovery page : all well here.
    Note that I had my coil removal surgery 8 years after the coils went in–the veins were long since dead. I dont know what to expect from the removal of newly placed coils. it seems like the veins wouldn’t be quite dead yet ; a sclerosing agent may have to be used. At any rate, i would look into to getting the coils removed asap. I wouldnt wait around if i were you.
    best

  213. I suffered from left sided varicocele grade 4 and i was totally afraid to make the normal surgery due to bad experience happened to a friend of mine so I started searching till I found the varicocele embolism. Finally I found that all websites says that there is no risk from embolism at all. Unfortunately i took the decision and I did varicocele embolism in August 2016 and suffering started.
    B12 deffiecency, flank pain, hip and leg pain, sciatica nerve pain. I suffer to any kind of pain related to nerves. Iam living on B12 medications everyday. I asked my IR who performed my surgery about the sciatica nerve pain specially that it was the first thing I felt and of course he said it is not related to the surgery.
    Anyway after I found this website and I believe that these coils affect the chemistry of our bodies and i am not the only one suffering from such surgery. you really acknowledged me to start searching for coil removal.

    Thanks for the admin and thanks for everyone here who shared these info. I wish i found that before surgery

  214. Hi Ave – thank you for the reply and update on your recovery. Happy to hear it’s continued to improve for you. I am searching for an understanding specialist to discuss the issue. If i have any luck or find out relevant info i’ll look to share with the group to the extent I’m not breaching anyone’s trust.

    A quick question, on your recovery. You mention the varicocele has continued to reappear and you can feel bloodflow coming back into the testis. Do you have any idea why this would happen so long after the offending vein had been embolised? Do you think there’s a chance the vein never fully died off and removing the coils allowed for bloodflow to reestablish? Or do you think removal may have allowed flow to alternative pathways? Hard to know but interested in what you think may be happening.

    I totally agree with you – I would take the varicocele symptoms over the embolisation symptoms any day!

    Thanks again

  215. Hi all

    I found out a bit more about my case. 5 different types of coils plus fibrovein (a sclerosant) were used. Coils stretch from the top of testes to the entrance of the renal vein across three distinct sections. Fibrovein, i imagine has been sandwiched in between.

    The coils at the top are the largest and this is the set i perceive as giving me the most trouble. I remember having an overseeing doctor come in half way through the procedure and instruct the performing radiologist to put these in to minimise the risk of migration. I wish she hadn’t, the middle section did not move.

    I have found a wonderful specialist who hasn’t ruled out anything. We didn’t specifically discuss removal though it was mentioned to take them out would be a very large operation as they stretch so far. Laparoscopic removal may not be an option.

    Edo – if you’re still checking the board i would be interested in more detail on your removal as it sounds as though you had a similar stretch of coils. Has anyone had coils removed where a sclerosant was also used?

    One piece of relevant info i did find out was the radiation dosage i was given from the fluoroscopy during insertion. Prior to the procedure i was told this would be very small. My dose was 15msv which is equivalent to a full body CT. Good to be aware of this as doses to the abdomen accumulate quickly.

    Last but not least the varicocele which had previously disappeared is now back in full swing. So not only is the procedure dangerous, for me it was a complete waste of time.

    People considering this procedure please heed the warnings and beware of the risks.

  216. Hello,

    It is now four months since I have had my coils removed. I am feeling almost back to how I felt pre-varicocele and embolization self. The biggest improvements since the removal of the coils have happened in the last month. I am coaching 7th grade boys basketball and am trying to run and condition with my players. I am also trying to do some construction work when I come home from teaching in the form of finishing out my basement. Both of these things I am able to do and not feel any of the weird inflammation or pay for the exertion the day after. My mental state (the most important thing to me) has also bounced back. I really felt abnormal, mentally, when the coils were inside me. I do not know if it is the constant distraction of the pain, weird sensations but I really did not feel myself and felt almost helpless when it came to controlling my responses to situations.

    As I look back at my experience, one thing that exacerbated my symptoms and I do not think I ever mentioned was coffee. I have drank coffee since I was a teenager, but when my coils were in, coffee added to my weird sensations, feelings of inflammation, anxiety, etc. I think it was a little of the caffeine and a little of something else because when I would have an occasional soda (coke) it would not effect me the way coffee did. In the last 4 months I have been able to have an occasional coffee but still find that it triggers some of the feelings that I felt when the coils were in. I do not know how to explain it but I thought I would share this because I never mentioned it and hope someone else might find cutting out coffee lessens some of the devastating effects of the coils like it did for me. Along with cutting out the coffee I found Nettle Leaf Tea (recommended by Ave) seemed to help and St. John’s Wort and Ashwaghanda supplements. I think about the stories on this page and feel happy for those that have had the coils removed and have had their symptoms improved. I also am glad that the stories shared on this page might help prevent others from going through unnecessary suffering by looking for alternatives to coil embolization. I pray for hope for those that are still suffering, I wish the industry would stop using materials that people have adverse reactions to. I wish the removal of the coils was simple and and readily available and that it worked to relieve the suffering of everyone that had the procedure in the first place.

  217. Thanks for sharing Scott. I also drink coffee each day but will switch to nettle leaf and will share if this helps. As you have found, st Johns Wort also provides some relief for me. Kava tablets have also been effective.

  218. I had my bilateral varicocele embolization 2 weeks ago WITHOUT the use of coils. It was performed by Dr. Robert Beecroft at the Mt. Sinai Hospital in Toronto. The procedure was very easy and went well. After finding this forum by “accident” the night before I was scheduled for a coil VE I cancelled that procedure and spent 4 months trying to find a doctor who would do it without coils. All the doctors I spoke with said I was crazy and that coils were perfectly safe and there was never a problem. When they would almost break my resolve I just re-read this forum to get my courage back.
    Dr. Beecroft also wanted to do the procedure with coils as he said there is a reduced risk of the varicoceles reforming in the future but he was very respectful of my wishes.
    So thank you to everyone here and I wish you all the best in your recovery. To people finding this site by “accident” too, do NOT take this forum lightly – these men have been through a terrible ordeal that can be easily avoided if you just find the right doctor. Good luck to all and thank you.

  219. Thanks John for your post. keep us posted on your progress, as the important thing is how things go long term.
    I am open to the possibility that non coil embolization may be a viable option for those that absolutely need to treat their varicocele, but I need more data, studies, and stories like your own before i can be convinced.

    Incidentally, i crossed paths a couple weeks ago with a radiologist here in Paris that performs coil embolizations. I did not hesitate to tell him exactly what i think about the procedure, and i told him about this website. He had not heard about it. He politely listened but argued that the risks and the possible side effects were low probability. In his defense, he was well aware of certain side effects (coil migration, etc), but i dont think he completely realizes their true consequences. I wonder if he properly warns people before the procedure….
    we who suffer are a very small minority, he argued. How to be so sure?
    i don’t believe this, considering the feedback here. and even so the risks are so great that this operation should only be performed under extreme circumstances.

    More to the point, I asked him about non coil embolization procedures. He believes that they are dangerous because there is a risk that during the procedure the sclerosing agent can seep back into the testicles, which would be disastrous he said. despite starting this website, my grasp of the anatomy and technical nature of embolization procedures remains limited, so i dont know really how to evaluate this assessment.
    best,
    ave

  220. Hello Ave,
    I learned about the coil-free embolization of the gonadal veins by reading studies published by interventional radiologists in Spain, Italy and Germany. These studies collectively followed many hundreds of men who had the procedure and they all did very well over the years (only a handful had any issues or had to have the procedure redone). I can list the papers here if you wish. Most of the men had the procedure for fertility issues and in the vast majority of cases this problem went away.
    Also an Israeli team of fertility doctors do the same procedure without coils (Gat/Goren).
    Dr. Beecroft reviewed these studies and said he could do it too. The risk as you mention is that the sclerosant agent can enter the testicles and cause inflammation. This is avoided during the procedure by pressing down on the base of the gonadal vein just above the entrance to the testes – it is called the inguinal canal. The doctor waits 5 minutes which is all the time it takes for the sclerosant to destroy the gonadal vein and any collaterals and the it is gone.
    Dr. Beecroft was very careful to do this. But some of the IRs I spoke with were really scared to try it and tried to scare me off. But in the hundreds of cases in the European studies there was only one case where sclerosant entered the testes and it was treated with ibuprofen and resolved.
    The urologists also offer a procedure for bad varicoceles. It is a surgical procedure done under a general anesthetic where they just sever the base of the gonadal veins – like a vasectomy. It has a long recovery and is very painful.
    In my case all my one-way valves in both gonadal veins were defective even though my scrotal ultrasound did not look so bad. My left testicle is very heavy with blood and has the awful “bag of worms”. So far after 2 weeks there is no improvement but I am told that is usual.
    One thing about these coil doctors: they told me too that there is little evidence that coils cause a problem. But when I asked them all if they followed up over the years with their patients none of them admitted to doing it. From reading all the stories here it seems that often the problems do not appear right away but take time. By then the IRs can safely say that it was not their procedure but must be caused by something else going on. They told me that too, even my Dr. Beecroft who I adore. So the cause-effect link is broken by time so these doctors can claim there was no issue with the coils.
    Thanks again for all your help and to everyone here who took the time to share their stories. I hope it works out well for everyone. I will keep you posted.
    John

Leave a Reply

Your email address will not be published.